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Old 12-28-2018, 01:09 PM #1
AnnieB3 AnnieB3 is offline
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Join Date: Feb 2009
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AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Are you back on Mestinon? I hope so!

If you don't have an oximeter, that might be a good thing to have. You can then know your normal and what isn't. Just don't panic if you have one on the plane with you! O2 tanks in an airplane.

I'm glad that your doc finally wised up, and got you treatment you need.

I'm sure that Dr. Weiss will help you with whatever you need. He has years of experience with MG, and treating it. He is an amazing doctor and human being. Just make sure that you ask as many questions as you need to. He might be able to refer you to a neuro closer to where you will be in FL.

Be careful in that Florida heat. Yeah, I know, it's winter. But you really have to stay cool. And please nap after any activity. Don't overdo. To me, your MG doesn't sound stable.

Please let us know how you are doing! Trust your instincts. I hope you have a good time.


Annie
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Old 12-31-2018, 08:13 AM #2
bchgrl bchgrl is offline
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Join Date: Nov 2018
Posts: 16
5 yr Member
bchgrl bchgrl is offline
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Join Date: Nov 2018
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Quote:
Originally Posted by AnnieB3 View Post
Are you back on Mestinon? I hope so!

If you don't have an oximeter, that might be a good thing to have. You can then know your normal and what isn't. Just don't panic if you have one on the plane with you! O2 tanks in an airplane.

I'm glad that your doc finally wised up, and got you treatment you need.

I'm sure that Dr. Weiss will help you with whatever you need. He has years of experience with MG, and treating it. He is an amazing doctor and human being. Just make sure that you ask as many questions as you need to. He might be able to refer you to a neuro closer to where you will be in FL.

Be careful in that Florida heat. Yeah, I know, it's winter. But you really have to stay cool. And please nap after any activity. Don't overdo. To me, your MG doesn't sound stable.

Please let us know how you are doing! Trust your instincts. I hope you have a good time.


Annie
Thanks! Yes, I have been back on pyridastigmine for a while. I was only off of it for 3 days.
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