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Old 03-07-2019, 03:39 PM #1
Rojo Rojo is offline
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Rojo Rojo is offline
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Hi Mikanro, et al: I'm new to this process and I am just learning about MG. However, I thought that I would toss into the discussion my situation since my Dr has started working on getting me on Soliris IV. As I understand it, the initial treatment requires Infusion for four consecutive weeks (1/wk) and then a higher does the fifth week -- then doses every other week forever. His main concern is to get me off of Prednisone. So far my problems have been mild and just related to my tongue and speech slurs -- this started "overnight" about 5 years ago. I am 84 years old now. Compared to many in this discussion, I have been very lucky. Wishing good luck to all.
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Old 03-10-2019, 09:19 AM #2
bchgrl bchgrl is offline
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Quote:
Originally Posted by Rojo View Post
Hi Mikanro, et al: I'm new to this process and I am just learning about MG. However, I thought that I would toss into the discussion my situation since my Dr has started working on getting me on Soliris IV. As I understand it, the initial treatment requires Infusion for four consecutive weeks (1/wk) and then a higher does the fifth week -- then doses every other week forever. His main concern is to get me off of Prednisone. So far my problems have been mild and just related to my tongue and speech slurs -- this started "overnight" about 5 years ago. I am 84 years old now. Compared to many in this discussion, I have been very lucky. Wishing good luck to all.
Good luck! I’m going to ask about Solaris next time I go to the doctor.
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