Hi, Mikanro. Welcome!

Do you not have a hospital near you? You should not have to suffer so long!

Specialist appts. are usually more thorough. They should do a good clinical exam, looking for weakness. They should run antibodies for MG, including AChR, MuSK, and LRP4 antibodies. Though they often run the AChR first, since that one is more common. They might do an RNS, EMG, or Single Fiber EMG; or they might schedule those for another date. Some clinics do pulmonary testing. If you have MG, they will probably due a chest CT scan. They look for thymic hyperplasia (larger than normal thymus) or thymic tumors. Don't worry about that though!

Have you had antibody tests done?

At least your current neuro is open enough to use Google! I think that is great. Regular neuros don't necessarily know about MG in depth. I'm always grateful when a doctor is humble and does more research. No one knows everything!

At the appt., they may even discuss treatment options, and offer to give you a prescription of Mestinon. If they offer steroids, please consider other options. Steroids are often used these days only as a rescue if someone is having an MG crisis. Steroids come with so many serious side effects and are almost impossible to withdraw from. They can use IVIG or plasmapheresis during a crisis as well.

Anything else you need help with? I'm sorry you are not doing well. If you become worse, please don't hesitate to dial 911. If your breathing is bad, you can't swallow, or you can't move well, those are emergencies. You need to seek out help right away.

Take it easy until your appt. I hope you'll be okay!

Annie