Cosmoe, that sounds encouraging.

The information here about Horner's syndrome might help you Horner's syndrome | Genetic and Rare Diseases Information Center (GARD) – an NCATS Program .

Annie - this thread in combination with a an "extreme muscle weakness can cause spasms" has sparked my curiousity, re: pain from pelvic floor spasms which I mentioned in a reply to my Newbie post. My PT has determined I *definitely* having mega pelvic floor throbbing spasms which tend to ease when I am stronger. The trigger point is always worse on my more myasthenic side, whichever side that is on whatever day. I am unclear as to whether this is partially due to me trying my best to remain ambulatory. That said, my neck and shoulders will also spasm when they are near giving out. My IVIG seems to keep me on see-saw of spasm symptoms. During IVIG I have spasms. How do you feel this relates to winic1's comment, although it has been stated there's no official MG diagnosis yet there. I am trying to sniff out all possibly angles to get rid of this pain and was wondering if that is also sounding inflammation related?

{QUOTE=AnnieB3;1270131]winic1, I did not mean to offend you in any way, nor insinuate that you did not belong here! But pain is not an essential part of MG, even though it can be a secondary symptom. I just wanted to clarify that for a "newbie."

What you have been through is horrible. The way you have been treated by "professionals" is truly inhumane. Please accept my apology if I offended you in any way.

Annie[/QUOTE]

Difficulty swallowing
 

Dear Cosmoe-
I was just diagnosed with MG. I was admitted to the hospital for plasma exchange (PLEX) when I couldn't swallow my own saliva. It felt like I could move saliva and food back into my throat but swallows were weak and required multiple attempts helped by a lot of water before finally swallowing. Ultimately, my swallowing muscles didn't respond and nothing would go down. My tongue became weak and it was difficult to move food. I was unable to purse my lips to suck on a straw or even whistle. My speech became dysarthric with an inability to pronounce certain letters or letter combinations. Also experienced ptosis--droopy eyelids. Much better after PLEX and initiation of predisone. I can speak clearly now and while eating can enjoy dinner conversation with family.