Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 12-03-2018, 02:56 AM #11
kiwi33's Avatar
kiwi33 kiwi33 is offline
Grand Magnate
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
kiwi33 kiwi33 is offline
Grand Magnate
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
Default

Cosmoe, that sounds encouraging.

The information here about Horner's syndrome might help you Horner's syndrome | Genetic and Rare Diseases Information Center (GARD) – an NCATS Program .
__________________
Knowledge is power.
kiwi33 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
cosmoe (12-05-2018)

advertisement
Old 02-21-2019, 04:16 PM #12
susan_mela susan_mela is offline
Junior Member
 
Join Date: Feb 2019
Posts: 18
5 yr Member
susan_mela susan_mela is offline
Junior Member
 
Join Date: Feb 2019
Posts: 18
5 yr Member
Default

Annie - this thread in combination with a an "extreme muscle weakness can cause spasms" has sparked my curiousity, re: pain from pelvic floor spasms which I mentioned in a reply to my Newbie post. My PT has determined I *definitely* having mega pelvic floor throbbing spasms which tend to ease when I am stronger. The trigger point is always worse on my more myasthenic side, whichever side that is on whatever day. I am unclear as to whether this is partially due to me trying my best to remain ambulatory. That said, my neck and shoulders will also spasm when they are near giving out. My IVIG seems to keep me on see-saw of spasm symptoms. During IVIG I have spasms. How do you feel this relates to winic1's comment, although it has been stated there's no official MG diagnosis yet there. I am trying to sniff out all possibly angles to get rid of this pain and was wondering if that is also sounding inflammation related?

{QUOTE=AnnieB3;1270131]winic1, I did not mean to offend you in any way, nor insinuate that you did not belong here! But pain is not an essential part of MG, even though it can be a secondary symptom. I just wanted to clarify that for a "newbie."

What you have been through is horrible. The way you have been treated by "professionals" is truly inhumane. Please accept my apology if I offended you in any way.

Annie[/QUOTE]
susan_mela is offline   Reply With QuoteReply With Quote
Old 02-28-2019, 06:42 PM #13
pgarrod711 pgarrod711 is offline
New Member
 
Join Date: Feb 2013
Posts: 3
10 yr Member
pgarrod711 pgarrod711 is offline
New Member
 
Join Date: Feb 2013
Posts: 3
10 yr Member
Default Difficulty swallowing

Dear Cosmoe-
I was just diagnosed with MG. I was admitted to the hospital for plasma exchange (PLEX) when I couldn't swallow my own saliva. It felt like I could move saliva and food back into my throat but swallows were weak and required multiple attempts helped by a lot of water before finally swallowing. Ultimately, my swallowing muscles didn't respond and nothing would go down. My tongue became weak and it was difficult to move food. I was unable to purse my lips to suck on a straw or even whistle. My speech became dysarthric with an inability to pronounce certain letters or letter combinations. Also experienced ptosis--droopy eyelids. Much better after PLEX and initiation of predisone. I can speak clearly now and while eating can enjoy dinner conversation with family.
pgarrod711 is offline   Reply With QuoteReply With Quote
Reply

Tags
difficulty, hard, idea, muscle, weakness

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
EFT for Symptoms bubblyshar Parkinson's Disease 3 07-04-2013 10:22 AM
Pain and symptoms increasing (and new symptoms) cndangel Reflex Sympathetic Dystrophy (RSD and CRPS) 16 04-25-2011 08:37 AM
New Symptoms??? SeamsLikeStitches Peripheral Neuropathy 2 06-04-2010 07:21 PM
MRI and symptoms? FinLady Multiple Sclerosis 5 01-31-2008 03:27 PM
PCS symptoms, what kind of symptoms and feelings do you have? applesap Traumatic Brain Injury and Post Concussion Syndrome 26 09-05-2007 11:21 PM


All times are GMT -5. The time now is 11:43 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.