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Old 01-23-2019, 04:58 AM #1
allen L allen L is offline
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allen L allen L is offline
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Its been years since I posted on this board.
Im sorry, life just got busy.

I wanted to once again thank everyone for giving me a positive attitude when I was down in the dumps.

Ive been on a steady course of cellcept and I still get IVIG (gamunex) every 10 weeks.

this combo has kept me in decent shape.

Im not young and as active as Ive been most of my life, but at 64, I have no complaints.

I still woodwork when Im feeling strong, and have been travelling a bit more, both by air and car. Just recently I drove out to Chicago from NY by myself with stops ofcourse. Felt good. feeling good.

My neuro seems to have things under control,

I hope everyone is feeling good.
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Old 01-24-2019, 10:21 PM #2
allen L allen L is offline
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Ive been feeling very good, I just finished this pantry cabinet for a relative. I am an amateur woodworker
I retired in 2010 and turned to woodworking to keep myself busy when I feel good

Ive grown to learn what my limits are and don't get depressed or miserable when things aren't going right with the mg.
Keeping a positive attitude all the time.
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Old 01-30-2019, 04:39 PM #3
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How great that you're feeling well enough and strong enough to continue with your hobby.

She's a beauty, Allen. Thanks for sharing.
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Old 02-01-2019, 08:33 PM #4
6thCranialNerve 6thCranialNerve is offline
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Quote:
Originally Posted by allen L View Post
Ive been feeling very good, I just finished this pantry cabinet for a relative. I am an amateur woodworker
I retired in 2010 and turned to woodworking to keep myself busy when I feel good

Ive grown to learn what my limits are and don't get depressed or miserable when things aren't going right with the mg.
Keeping a positive attitude all the time.
Gorgeous and talented work! I was dx with Ocular Myasthenia Gravis 9/18. I am on Mestinon, Cellcept, Previgen 100GM every 3 weeks. I was taking my IVIG every 4 weeks; but having breakthrough. I am looking forward to seeing an improvement in my health after several rounds. I hope to go back to work part-time. I am an infusion nurse and have given over 100K grams of IVIG. Isn't it ironic?
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Old 02-05-2019, 06:41 PM #5
allen L allen L is offline
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Quote:
Originally Posted by 6thCranialNerve View Post
Gorgeous and talented work! I was dx with Ocular Myasthenia Gravis 9/18. I am on Mestinon, Cellcept, Previgen 100GM every 3 weeks. I was taking my IVIG every 4 weeks; but having breakthrough. I am looking forward to seeing an improvement in my health after several rounds. I hope to go back to work part-time. I am an infusion nurse and have given over 100K grams of IVIG. Isn't it ironic?

not ironic, just a bad draw of cards, that's the way I always viewed it.
got dealt a cruddy hand.

give the cellcept time to kick in, it was amazing for me alleviated most of the tougher symptoms.
feel good.
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Old 02-20-2019, 10:37 PM #6
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Hey, Allen!!! Nice to see you! What a beautiful cabinet!

I'm glad you're doing well. Good thing that the Cellcept kicked in.

Creativity really helps, doesn't it? Everything else kind of disappears when focused on creating. I try to meditate, listen to soothing music, watch good vids (usually educational), play with my Shih Tzu, and write. Not that easy some days though.

Don't be a stranger! I miss so many people from the forum. Here's hoping that you will continue to do well!!!


Annie
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Old 02-21-2019, 05:05 PM #7
susan_mela susan_mela is offline
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Beautiful work. Keep up the spirit!

Quote:
Originally Posted by allen L View Post
Ive been feeling very good, I just finished this pantry cabinet for a relative. I am an amateur woodworker
I retired in 2010 and turned to woodworking to keep myself busy when I feel good

Ive grown to learn what my limits are and don't get depressed or miserable when things aren't going right with the mg.
Keeping a positive attitude all the time.
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