Go Back   NeuroTalk Support Groups > >

Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

yeah finally starting soliris wednesday

Thread Tools Display Modes
Old 02-04-2019, 02:01 PM   #1
Junior Member
Join Date: Jan 2011
Posts: 15
Default yeah finally starting soliris wednesday

hi all just a quick update, been struggling lately best that i start backward just got released from hospitals last saturday , been in three hospitals last 10 days local transferred after 2 days to barrow neurological for 3-4 days and then tried to go home lasted 1 night ended up at mayo clinic hospital for 5-6 days was also hospitalized in mid january at barrow with myasthenia crisis was in neuro icu for plasmapharisis they decided it was too risky ,had testing done spne ct scan since then i have devoloped spine fractures at t7-t5 with no trauma, they are blaming steroids , barrow felt the risk was too great and gave me pain management didnt last 1 day ended up at mayo they werent too keen on surgery also radiational surgical intervention came to my rescue , it was a battle between drs to get them to sign off on it i had my spine injected with cement drs said it was one the worst cases according to neuro surgeon , just blows my mind how these fractures can develop,
azwild is offline   Reply With Quote
"Thanks for this!" says:
AnnieB3 (02-20-2019)
Old 02-20-2019, 09:31 PM   #2
Grand Magnate
Join Date: Feb 2009
Posts: 3,300

Hi, azwild. Haven't seen you in a while!

I'm sorry you're going through so much. Yeah, I blame steroids too. Seen a lot of friends end up with brittle bones.

I hope the drug works for you!! Can they even lower your Pred dose? You don't sound very stable. Have they checked for other things going on, that might be making MG worse?

I hope you will get better!!! Life totally sucks when MG decides to act up!

AnnieB3 is offline   Reply With Quote
"Thanks for this!" says:
azwild (02-23-2019)

barrow, days, drs, fractures, hospitals

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
new class starting on wednesday mymorgy Bipolar Disorder 8 06-15-2017 07:38 AM
New Member Finally Starting to Get Answers Valleydachs New Member Introductions 9 10-19-2015 12:31 PM
3.0 Klonopin at 9:00 pm -- finally starting to wear off Mari Bipolar Disorder 6 01-04-2011 06:11 PM
Starting copaxone again next Wednesday barb02 Multiple Sclerosis 5 01-24-2009 04:25 PM
Yeah, Finally, revision surgery lostmary Reflex Sympathetic Dystrophy (RSD and CRPS) 7 10-20-2008 02:22 PM

All times are GMT -5. The time now is 08:14 AM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.

Powered by vBulletin • Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy