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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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03-18-2019, 10:32 PM | #7 | |||
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Thanks for taking the time to pass along this valuable information. As so many adults (esp. post-menopausal women) have issues with Lactose, it almost seems like some sort of subterfuge using it as a filler in this way. As Winnic1 brought to my attention, the Lactose filler may be a contributing factor. I haven't been on in a number of days as things have been very hectic, but I did bring it up with her doctor. In the meantime, I got my wife to go back to a half pill (30mg) which helped her in the short-term. We conferred with her neurologist and now she is back to a full tablet with an added prescription for Hyoscyamine Sulfate, which is a common med for IBS. Unfortunately, she just filled her script for Mestinon, so we'll have to wait a month before she can try the syrup, but I believe that is the way to go. Why have the added potential for Lactose problems if they can be avoided altogether? She is not a candidate for the time-release because she cannot swallow pills and needs to crush her pills. We'll see how she does with the added med. - so far since going back to a full 60mg she has experienced less distress, but it seems to be bothering her a little more each day. I think the real test will be when we can get her on the syrup and hopefully not even require a supplemental medication. Will keep everyone posted as to how it works out. Many thanks, Daniel |
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