Hi,

I’m new to the forum and have done some searching but not found anything mentioned that I experience on occasion.

1st
Generally, when this occurs, I’m standing or walking. I feel a rush of weakness start from my head to my toes. I feel lightheaded briefly following the event. I quickly recover within 5 mins or so. It’s disturbing, nonetheless.

2nd
Yesterday I felt weird all day accompanied by GI issues, nausea and extreme fatigue.
A sense of surreal (mentally) is how I would describe the weird feeling.
Later in the evening, I was at work (just returned 3 days ago after being out 8 months following MG crisis) and I felt that dreaded weakness start but this time i didn’t recover. I felt so weak and for the first time, I could hardly keep my eyes open. My position requires travel and I had to leave that facility in order to drive to the next. About 30 mins in, I had to pull over as I just couldn’t keep my eyelids opens and equally as scary, I guess you could say my core went weak. I could not continue sitting upright, unsupported and found myself deeply slumped over in my seat, my muscles were so exhausted.
911 had to be contacted and I spent several hrs in a hospital where I finally recovered my sight and could support myself sitting.

Has anyone experienced this before?

Thanks for taking the time to read.




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