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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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03-20-2019, 10:17 PM | #1 | ||
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Junior Member
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Hi my name is Sandra.
I was diagnosed with Myasthenia Gravis in 2015. I take Mestinon,Cellcept and get IVIG infusion every 3 weeks. I am still weak all the time. My neurologist mention during my last visit with her, that we might have to think about plasmapheresis. I have done research on plasmapheresis, but I still have questions. 1. How long will I have to do this for? 2. How often will I have to do the treatment? 3. Will I have to have a port put in? 4. Will I still get my IVIG infusions? If you have any information you could share with me, I would greatly appreciate it. |
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