Go Back   NeuroTalk Support Groups > >

Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

getting discouraged

Thread Tools Display Modes
Old 04-08-2019, 11:24 AM   #1
Junior Member
Join Date: Sep 2014
Posts: 22
Default getting discouraged

I am really getting tired of putting on the happy face --I feel that I should be exercising but my legs feel weak and hurt. I have been diagnosed with ocular MG, high blood pressure, low thyroid, high cholesterol - all medicated and doing OK - I have had to give up taking statins as they seem to make the weakness worse - I am very careful with diet to help with the cholesterol - guess I should be talking to my doctor about these thoughts. I guess my main question is how much to all of you exercise - weights ?? walking ?? any suggestions?
nikos is offline   Reply With Quote
Old 04-10-2019, 02:00 PM   #2
Join Date: Feb 2011
Posts: 288

Trying for a formal exercise program may just be too much. If you are exhausting your muscles to where you are weak and in pain, that's too much. I just do what I can, when I can. Take the dog for a leisurely walk (he likes to sniff every blade of grass on the way anyway). Sit in a comfy chair and do the arm movements of the Tai Chi I used to know (a little) for just a few minutes, so I don't get to the over exhausted stage. Lots of little bits work much better for me than any extended or intense activity.

If your MG is affecting your leg and body muscles, then exercising isn't going to fix that. It would be like thinking that you can make your car stop running out of gas by driving it more. Nope, when you're out of gas, you're out of gas, and you have to stop driving until you get a refill. When your muscles say "I've had enough now", working them longer won't help, giving them a rest to "refill" will.

Definitely talk with your doctor about what's going on. If your doc comes back with one of those "no pain, no gain" lines, find another doctor. You can't fix MG by just trying harder. You'll need a doctor who understands it and knows how to treat it and work within it.
winic1 is offline   Reply With Quote

cholesterol, diet, feel, guess, talking

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Getting discouraged... Lbee Myasthenia Gravis 5 09-20-2017 01:45 PM
discouraged zinnia Reflex Sympathetic Dystrophy (RSD and CRPS) 17 01-28-2016 03:27 PM
Discouraged Hannah Garringer Arnold Chiari Malformation & Syringomyelia 1 09-23-2011 10:38 AM
So discouraged rose_thorn98 Peripheral Neuropathy 15 11-18-2010 05:25 AM

All times are GMT -5. The time now is 11:36 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.

Powered by vBulletin • Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy