Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 04-28-2019, 11:41 AM #1
Lala5179 Lala5179 is offline
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Join Date: Apr 2019
Posts: 2
5 yr Member
Lala5179 Lala5179 is offline
New Member
 
Join Date: Apr 2019
Posts: 2
5 yr Member
Default New Diagnosis

I was diagnosed with Myasthenia Gravis 4 weeks ago. On Mestinon and Prednisone. Still having some double vision. I cut down Prednisone dose myself because of side effects. I do experience fatigue, occasional shortness of breath,and sores on lips and inside cheeks as if I bit inside of cheek but I didn’t. My husband passed in November and the only family I have is my adult son who I am very grateful for. We are both mourning the death and now dealing with this. I’m a cancer survivor and feel this is so unfair, I’m in denial at times, angry and having a difficult time trying to adjust living with MG. I don’t have anybody that I can talk to that understands.Don’t know what prognosis is for me but as I research, it could be a bumpy ride. Any advice?
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