Quote:
Originally Posted by wbdolphin
Are you able to get a second opinion from a different neurologist not affiliated with the current neurologist? Especially one that “specializes” in MG, and has a good number of MG patients.
It’s my understanding that positive ACHR means you tested positive for MG. The quantitative number result does not indicate the severity of the disease, just that you tested positive for it.
Lisa
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Hi, thank you for your input. Yes, I guess that's what I'm going to have to do if the doctor argues against MG at my appt next week. Sadly, this was all at the Cleveland Clinic in their neuromuscular dept so you would think it would be top notch. He's saying that with the normal SFEMG, I don't have it even though I have positive antibodies and symptoms and he's the one who ordered the blood test! I just wanted to confirm that my thought process was correct that positive means positive!
06-23-2019, 09:57 AM
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