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Negative AChR Antibodies test and Normal SFEMG

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Old 08-15-2019, 08:10 AM   #1
SB_83
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Join Date: Aug 2019
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Default Negative AChR Antibodies test and Normal SFEMG

Hi everyone, Iím new to this form and wonder if anyone has tested normal for the above, but still been diagnosed with MG?

Iíve had fatiguable ptosis since February, with vertical DV. The DV is mild, however, the ptosis means itís very difficult at times to keep my eyes open. Iíve therefore not worked for almost 6 months.

Blood tests were normal back in Feb/March, however, ALL eye examinations were positive i.e Ice pack test, Coganís lid twitch, Simpson test, and Gorelickís sign.

Due to the above, doctors (and myself) were confident of OMG diagnosis. I was prescribed Mestinon, however this did very little for me, and Neuro then referred me for nerve stimulation test and SFEMG to try to clarify the diagnosis.

Well, this morning, I received the results of these tests, and findings were all normal! The letter from my Neuro is now saying itís likely theyíll rule MG out!

Iím feeling exhausted by all this, and so confused. In all my time seeing the doctors, no one has ever given me a suggestion of a differential diagnosis! Any ideas?
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Old 08-19-2019, 12:17 AM   #2
Jeid
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Join Date: Aug 2019
Posts: 4
Default

Quote:
Originally Posted by SB_83 View Post
Hi everyone, Iím new to this form and wonder if anyone has tested normal for the above, but still been diagnosed with MG?

Iíve had fatiguable ptosis since February, with vertical DV. The DV is mild, however, the ptosis means itís very difficult at times to keep my eyes open. Iíve therefore not worked for almost 6 months.

Blood tests were normal back in Feb/March, however, ALL eye examinations were positive i.e Ice pack test, Coganís lid twitch, Simpson test, and Gorelickís sign.

Due to the above, doctors (and myself) were confident of OMG diagnosis. I was prescribed Mestinon, however this did very little for me, and Neuro then referred me for nerve stimulation test and SFEMG to try to clarify the diagnosis.

Well, this morning, I received the results of these tests, and findings were all normal! The letter from my Neuro is now saying itís likely theyíll rule MG out!

Iím feeling exhausted by all this, and so confused. In all my time seeing the doctors, no one has ever given me a suggestion of a differential diagnosis! Any ideas?

Hello i have same dilemma as yours..i have undergone EMG and it is normal but i havnt tried yet the bloodtest..i have some symptoms of myasthenia gravisb like difficulty focusing vision on a certian direction..double vision and headache.i hope i can find answers also from your post.
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Old 08-24-2019, 10:36 PM   #3
Nac Mac Feegle
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Join Date: Nov 2015
Location: Phoenix, AZ
Posts: 19
Default When you had the tests, were you on Mestinon?

Mestiion will increase the effectiveness of the nerve junction,which will tend to give false negative information, maybe enough to give a 'false negative' test result.
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