Go Back   NeuroTalk Support Groups > >

Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

Is it myasthenia gravis or not?i am still confused.

Reply
 
Thread Tools Display Modes
Old 08-18-2019, 04:02 AM   #1
Jeid
New Member
 
Join Date: Aug 2019
Posts: 4
Exclamation Is it myasthenia gravis or not?i am still confused.

Hello everyone.i will state here some of my experiences and i hope theres someone who can patiently read it and share some thoughts.
I am 30 years old female.yes ia m confused with my condition right now..because last year 2017 i was ad mitted in a hospital because i am having a crossed eye and double vision as well and headaches. I undergone some tests like emg ct scans and mri . They are all normal.i went through lumbar puncture also and they found out i am having an increasing pressure in my head and the causes are unknown. So the doctor prescribed a diuretic to lessen that pressure..the medicationis acetazolamide and it went well..my double vision gradually disappears and also thr cross eye.after 2 months, because i havnt bought my medications and havn't taken for a week..my condition went back..gradually cross eye went back double vision as well and worse i've got droopy eyelid on one side only..then i continued my acetazolamide but it doesn't went well as fast as before..i suffered having double vision forlike 3 months i think but eventually the double visions lessens..and then this year january, iwent to another neurologist to have a second opinion..i undergone emg ct scan again and the result still negative for myasthenia gravis. I am now confused because i have some symptoms experiencing regarding myasthenia gravis yet all the tests are negative as well. Can anyone have a greater knowledge of this condition and share some thoughts? Whatbare the right thing to do? I am currently experiencing on and off double visionand i need to focuse to what i am looking at for a cleaarer vision and i am having headaches as well bit it is tolerable...thank you.
Jeid is offline   Reply With Quote
Old 08-18-2019, 04:19 PM   #2
kiwi33
Magnate
Community Welcome Team
 
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 2,620
My Mood: Is it myasthenia gravis or not?i am still confused.
Default

Hi Jeid

Welcome to NeuroTalk .

I have no direct experience of MG but do know about immunology.

The eye weaknesses you have described fit with MG.

MG is an autoimmune disease. What this means is that people with it make antibodies against proteins which are found at neuromuscular junctions. This can lead to eye problems like yours. Two neuromuscular junction proteins called AChR and MuSK have been implicated in this.

The information in this site may help you.

Myasthenia gravis - Better Health Channel

All the best.
__________________
Knowledge is power.
kiwi33 is offline   Reply With Quote
Old 08-19-2019, 12:10 AM   #3
Jeid
New Member
 
Join Date: Aug 2019
Posts: 4
Default

Thank you very much for the response and the link you have given helped me a lot to details about myasthenia gravis..but my problem is why does my diagnostics tests results to negative in myasthenia gravis.i undegone mri ct scan emg but all are normal but i am still experiencing some of the symptoms of myasthenia gravis like difficulty focusing in a certain direction, double vision and headaches.my body tells i do have myasthenia yet my diagnostics are not.
Jeid is offline   Reply With Quote
Old 08-19-2019, 07:13 PM   #4
kiwi33
Magnate
Community Welcome Team
 
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 2,620
My Mood: Is it myasthenia gravis or not?i am still confused.
Default

Maybe some of the tests that you mentioned (MRI and CT scans) were done to examine your thymus gland.

Abnormalities in the thymus can be linked to MG but this is not always the case.
__________________
Knowledge is power.
kiwi33 is offline   Reply With Quote
Old 08-19-2019, 10:39 PM   #5
Jeid
New Member
 
Join Date: Aug 2019
Posts: 4
Default

Quote:
Originally Posted by kiwi33 View Post
Maybe some of the tests that you mentioned (MRI and CT scans) were done to examine your thymus gland.

Abnormalities in the thymus can be linked to MG but this is not always the case.

I am hopeful that this is not MG. I took SFEMG and i am negative to MG.i really do hope o would know what is happening to my body and find a doctor who can figure it out..thank you very much for the info.
Jeid is offline   Reply With Quote
Old 08-26-2019, 03:57 PM   #6
levisanz
New Member
 
Join Date: Aug 2019
Location: Kingston, Rhode Island
Posts: 5
Default

I spent 3 months going from one specialist to the other only to be told that there was nothing wrong with me. It wasn't until I saw a neurologist that ordered a blood test specific to MG that I found out that I had it.
levisanz is offline   Reply With Quote
Reply

Tags
condition, double, gravis, myasthenia, vision

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Myasthenia gravis or ? OldSchool1 Myasthenia Gravis 3 02-21-2016 04:55 PM
RSD and Myasthenia gravis cait24 Reflex Sympathetic Dystrophy (RSD and CRPS) 1 08-02-2013 12:01 AM
Myasthenia Gravis TBourque Myasthenia Gravis 1 05-31-2013 03:31 PM
Myasthenia gravis and MS? jacksonsmommy Multiple Sclerosis 1 01-30-2013 04:46 PM
myasthenia gravis brenda shepare New Member Introductions 5 02-21-2009 01:35 PM


All times are GMT -5. The time now is 02:50 AM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy