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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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I don’t understand these tests results . And I had to jump through hoops to get a copy. Finally sicced my daughter on them. She’s like a dog with a bone, so she got them for me. Drs nurse was so rude, I will probably find a new neurologist. They are dragging their feet, while I feel worse. These tests were done on November 18.
Acetylcholine Receptor, Binding <0.30 neoliberals/L Acetylcholine Receptor, Blocking <15 Acetylcholine Receptor, Modulating 9%. <32% inhibition CK 27 U/L Folate 17.10 by/mL Vitamin B-12. 281 pg/mL I do take vitamins and supplements and I started B-12 shortly before this blood draw. I’ve lost more than 10 more lbs since this test, for a total of over 30 lbs since September. Also, I’m seeing rheumatologist at end of January, because I have Sjögrens and I’m pretty sure it could be a big part of the problem. But, Sjögrens doesn’t explain the chewing and swallowing problems. |
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