Nice to have you back Annie. Sorry that you are having more problems.
My husband seems to be worse but we can't figure out what is going on. He is totally exhausted but breathing ok. He wakes up and an hour later needs to go back to sleep. The sleep does not seem to improve things the way it used to. He seems to pick up about ten hours later. Can the meds be taking that long to work?
He currently takes 60mg Pyrodostigmine 4 times a day and 5mg of Prednisone 4 times a day.
In the current virus situation we had to cancel his neuro visit. In any case I feel sure that he would just have increased the Prednisone which we don't want as the side effects have been awful. I'm not even sure if the exhaustion isn't a side effect itself.