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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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03-18-2020, 10:18 PM | #1 | ||
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Grand Magnate
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I hope everyone is doing well. Me? Not so much.
Besides caring for my mom, who had to go into a nursing home in 2016, I have had a bunch of new things come up due to insufficiently treated MG. My MG has become worse. Due to that, I have had hypoxia at night for who knows how long now. I have O2 every night, which helps. But I also have "unidentified bright objects" or UBOs (like UFOs—lol) in my brain (brain damage). I have pulmonary hypertension, which might get better with oxygen. Hypoxia causes PH. So, if your MG is not doing well, please have a sleep study or an overnight oximetry. Hypoxia can damage tissues all over the body. And if your breathing is worse, don't assume MG is causing that. See a cardiologist. If any of you do need oxygen at night, just know that you are at the mercy of a previous owner of an oxygen concentrator. Medicare and other insurance companies only rent them. I can't deal with smells, etc. so I was forced to buy a new one. Glad I did. I missed you guys. Life has just been nonstop shtf. Annie Last edited by AnnieB3; 03-18-2020 at 10:59 PM. |
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