Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 04-26-2020, 08:24 PM #1
polockblind polockblind is offline
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Default Now what?

Been on Mestinon for 4 months. Starting to not work........by 1200 noon, I struggle to see one image. My double vision begins. This has gotten worse over the last 6 weeks. Any ideas what’s next? Many thanks!
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Old 04-26-2020, 09:58 PM #2
JimInMI JimInMI is offline
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How much Mestinon are you on? Mestinon doesn’t always work for eye issues. Ask your neurologist or optho-neurologist. I don’t have eye issues so I’m not much help. Jim
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Old 04-27-2020, 12:37 AM #3
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I don't have MG but do have MS and can sympathize with vision problems like double vision.

I found this about ocular MG but the only suggestion here is wearing an eye patch over one eye. It might be worth a try if you haven't already done that:

https://www.brighamandwomens.org/neu...sthenia-gravis
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