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Old 01-03-2021, 02:24 PM #1
Tony292 Tony292 is offline
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Join Date: Apr 2013
Posts: 11
8 yr Member
Tony292 Tony292 is offline
Junior Member
 
Join Date: Apr 2013
Posts: 11
8 yr Member
Default Looking for seronegative friendly DR in Idaho

Hello,

I havenít been in here in a while but Iíve had MG for 8 years now, seronegative, although never tested for LRP4. I was diagnosed 5 years ago bay neuro ophthalmologist due to positive mestinon response. Iím currently in Bose Idaho and looking for a seronegative friendly neurologist in the Boise Idaho area. Thanks.
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Old 04-19-2021, 08:04 PM #2
Sculptor44 Sculptor44 is offline
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Sculptor44 Sculptor44 is offline
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Default Seeking the right doctor...

I so so feel for you wanting a better doctor. I started on Mestinon thankfully in July of 08. I was already so weak my diet had become lousy cause I couldnít walk a full grocery store.. I had an attack during a really hot shower affecting breathing and was tried with Mestinon in hospital. Could you make it to Mayo Clinic in Minn. ? They did a lot for me. They discovered something new each time I was there.. I have a young neuro since 2009 who keeps giving me Mestinon but wonít do more. A senior doctor actually sent me home from hospital 2 years ago still unable to stand up from a chair.. This incident has my daughter traumatized and scared about our coming trip to Mayo Clinic. Sculptor44
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