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Old 02-07-2021, 11:29 AM #8
Bearsmommy Bearsmommy is offline
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Join Date: Jan 2021
Location: California
Posts: 2
3 yr Member
Bearsmommy Bearsmommy is offline
Newly Joined
 
Join Date: Jan 2021
Location: California
Posts: 2
3 yr Member
Default Thanks for the replies

Hello all, still figuring out how this works. I appreciate you for responding.
He is going to see a neuro at one of California's research hospitals. Not sure if I can say but, I feel good about it.
He had Bells palsy at 32, so he thinks that is why his eye droops. I disagree, because it comes and goes.

I have pictures showing it at different stages. My worry is the dysarthria, which since October, has been daily.

The nasal voice and choking, have all ramped up since then. His voice is good early in the morning. His cough is weak, and eating brings on the coughing choking gag and nasal regurgitation.

He cannot whistle, and if he smiles, it looks like a snarl.

Is it possible that an exacerbation is how a person finds out they have MG?

So I won't bug you guys until he sees the neuro, but I needed someone to talk to. The neg test threw me for a loop, and got me thinking of worse things.

Thank you all for being here for me right now, I am scared and your words help.
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