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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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04-07-2021, 10:48 PM | #1 | ||
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Thank you so much for posting this, I am so nervous about it causing an exacerbation, and have been told to pause my immunosuppressants the weeks I get the injection too. I'll be looking for your update! Good luck, and again, thank you!
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04-10-2021, 09:55 PM | #2 | ||
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Hi! Just received the second dose today, early this morning. No exacerbation so far, only the usual vaccine related immediate side effects like pain and warm sensation at the injection site. Honestly; afraid to say this, but I feel completely normal. Anxious to wake up tomorrow and see how my eyes will be reacting. Will post tomorrow morning one way or the other.
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04-11-2021, 03:47 PM | #3 | ||
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New Member
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Hi. Day after second dose of covid-19 vaccine update. So far no MG symptoms exacerbation. Residual generalized weakness and droopy eyelids has stayed unchanged since first dose.
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05-06-2021, 10:26 PM | #4 | ||
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Member
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Thank you so much for your update, and documenting this for us. I am debating getting it, and I'm so nervous. But of course just the anxiety of it can cause issues nevermind the holding of the immunosuppresants (which i've also been advised to do), and the immune stimulation of the vaccine.... Thanks again - hope your well!
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05-13-2021, 05:31 PM | #5 | ||
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New Member
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Hi. Just a quick update to inform that no side effects or MG symptoms exacerbation after month and a half of the second dose.
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06-20-2021, 03:49 AM | #6 | ||
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New Member
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Sorry, I read the vaccine inserts which clearly states it incites an autoimmune response. No way I am even considering it. ** 😔
Last edited by Chemar; 06-20-2021 at 11:59 AM. Reason: ** NeuroTalk Guidelines |
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06-26-2021, 10:56 PM | #7 | ||
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I got my first one almost 3 weeks ago, holding my immunosuppresants and SQIG... did have some exacerbation after it (droopy face, snarl of a smile, and generalized weakness with some swallowing issues).. but tolerable.. and got much better once i got back on my immunosuppresant and SQIG... I have shot number two this week.. and I am nervous for that one! But with the new data coming in about the effectiveness with the delta variant, I'll be happy to hopefully have some immunity, esp with the littles headed back to school in August
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