Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 06-02-2021, 07:17 AM #7
Sculptor44 Sculptor44 is offline
Member
 
Join Date: Oct 2020
Posts: 180
3 yr Member
Sculptor44 Sculptor44 is offline
Member
 
Join Date: Oct 2020
Posts: 180
3 yr Member
Default

so my daughter blew up at me. It is safer to blow up at someone you love than say at work. Last time she had giant blow up at a nurse in January it actually resulted in the doctor signing me up for a special extra waiver. Now we just discovered this recently because no one ever told us and I am unclear that it does much but bend some rules so I could easier get into a skilled nursing facility. It sounds like she had some lesser blow up with my neuro nurse recently. What I am clear on is that I am not going to get support for treatment from The University Of Iowa Neurology. There is a neuro there named Buchanan who with no exam threw out the complete exam by a good resident in the span of 5 minutes and his recommendation I be admitted to ICU. He accused me of just seeking steroids and stormed out of ER room. I ended up in hospital because my Iowa City internist had sent me to that ER in a wheelchair directly from her appointment with me. My color was even bad that morning. I fully believe short of me being shot or diagnosed with cancer Iowa City will not help lift us from this place. My daughter and I are both drowning. I am gonna need to call and talk to the office social worker for my newer GP to hopefully square some misperceptions before my next appointment with GP Monday. Also establish key points. This social worker had chance to get a great overview on my health from my caseworker before she retired. Yet in last check in with my caseworker she said office social workers biggest question was why I won’t gleefully agree to CPAP. AAARRRRGGHH!! Sculptor44
Sculptor44 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lara (06-03-2021)
 

Tags
chest, daughter, mayo, pain, talked


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Revelation of the day DFayesMom Traumatic Brain Injury and Post Concussion Syndrome 3 05-19-2013 08:59 PM
Pulmonologist visit southblues Myasthenia Gravis 6 05-11-2013 10:55 AM
More new docs.....pulmonologist firegirl Reflex Sympathetic Dystrophy (RSD and CRPS) 2 10-08-2010 06:16 PM
A Revelation BJ Sanctuary for Spiritual Support 10 02-25-2008 09:21 PM
~revelation~ i take it all back! awesomeskier5 Trigeminal Neuralgia 11 03-01-2007 08:14 PM


All times are GMT -5. The time now is 05:22 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.