NeuroTalk Support Groups - TALKED to local neurologist

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)

- - TALKED to local neurologist (https://www.neurotalk.org/myasthenia-gravis/256821-talked-local-neurologist.html)

Thank you for posts. One of the things I am really hoping for is a more solid diagnosis with treatment plan. I have more than myasthenia now . I saw a great holistic chiropractor who was an amazing person on healing touch and/or reading bodies. Not sure what I should call it. A homemaker I had told me her client who had ALS used the fella regularly. He also knew acupuncture tho I didn’t get that and he did a very skillful and gentle adjustment to my left jaw which is also where I have face pain. Occipital nerve pain. I only saw him once because he worked out of a sports clinic that didn’t take Medicare for the parts it could pay for. I could not afford him sadly. Got off of a point I meant to make. Getting treatment beyond Mestinon should help my vision. This is truly the worst so I don’t catch all that is said. I have 2 appointments in August at Mayo. I looked up the neuro and he seems pretty perfect for my situation AND his rating is 5/5. My symptoms likely were my eyes first. In my 30s. In 2008 I was put in hospital for possible myasthenic crisis after I collapsed in a very hot shower. Sculptor 44

Thank you for sharing! And I'm happy you have 2 appts coming up in August w a neurologist that looks good.
And yes Holistic chiropractor and acupuncture therepy can be helpful for so many challenging conditions. Unfortunately I completely understand how costly treatments can be esp when not covered by insurance.

Do you happen to recall what was happening in your life during the onset of your vision symptoms and your collapse in 2008? Could be any general memory at all (life changes/transition, something w family, friends, work, etc)

Also Sculpture 44 is cool are you into art?