Hi Sculptor44,
I understand that many hospitals in some areas are very short on staff just now because they've been overloaded with COVID cases. Maybe that's what's been happening with you. I hope you can get some decent treatment in spite of the uphill battle you're having.

You might need to keep reminding staff people as they come along that you have myasthenia gravis. Doctors have a way of not referring to a patient's chart or medical history, particularly if they're in a hurry. And they're always in a hurry, seemingly.

You fell 3 times in the last week? I hope there were no serious injuries.

Yes, nurses are a great resource!

Because of recent Solumedrol at ER my Vision is some improved so I was reading this feedback mostly for first time. My vision is so so variable. My left eye is worse in someways. I can’t look to that side without my getting extreme double vision.. I so want to be well enough to get some help with my eyes. I did get positive Covid-19 test at ER but they did not admit me. They said I could get antibodies treatment but it was confusing on how they decided if you could get it. Iowa City said if I were seen there I would have gotten it. I signed up this week for a research project thru Johns Hopkins on how those with immune system and transplant situations do with vaccines. If anyone wants to know how to find this info let me know. I do so appreciate all your thoughts and writings. Sculptor 44

The research project sounds very interesting. I don't have MG as you know by now, but I am on Immunotherapy for cancer treatment so my immune system is very revved up.

I did very poorly with my vaccines for covid. It's taken me a long time to really recover. I was too ill to even have my cancer treatments at the time. The second vaccine was better than the first. I was advised to take antihistamines before and after and the side effects weren't as severe.

You're "sounding" much more settled. I'm happy to see that.

I'd be interested to know how the research project goes, Sculptor. Good luck with it.