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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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03-03-2022, 01:02 AM | #1 | ||
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Glad you came and posted. I thought of my first needle test so long ago . There is a great deal of variability in testing and just the basic neuro exam in my experience. I was very fortunate to have brilliant and kind providers at times including one Pulmonologist at Mayo Clinic in Minnesota. My case is very unique and confusing so I forgive Mayo but also see limits to testing . Sculptor 44.
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03-04-2022, 09:40 AM | #2 | ||
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Grand Magnate
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Welcome twirl.
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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03-31-2024, 05:19 PM | #3 | |||
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My doctor was so brutal with these studies 30 years ago, that I screamed and cried through a head to toe study. I had 3 children and childbirth was nothing in comparison pain wise... They left me with severe widespread burning. They thought I had CIDP...
I am trying to find out what is wrong with me, since I now have LRP4 antibodies... Yorkiemom |
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