Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 05-09-2022, 08:04 AM #1
Sculptor44 Sculptor44 is offline
Member
 
Join Date: Oct 2020
Posts: 180
3 yr Member
Sculptor44 Sculptor44 is offline
Member
 
Join Date: Oct 2020
Posts: 180
3 yr Member
Default

It is more difficult to do daily tasks so getting here is still not happening as usual. It seems clear that Gammagard has affected my Renal system. But at same time I have turned a corner finding my breathing better allowing me to sleep longer and more comfortably. I called the neurologist I did a Televisit with in November at Mayo to report the Gammagard and generally declined status. I got a call back same day. I tried to push what happened a year ago when I was was so much worse I collapsed and had to come home before testing. I need to add here that I didn’t agree with the path that appointment was gonna take me and I was too sick to try to fix it. My daughter was scared and furious. The pulmonologist a year ago at Mayo was not my original one. While new guy gave us important information he didn’t interview me. He was very disrespectful. Anyway I have to fix the mess from last time tho someone at Mayo gets it as I was changed to a new Path with this current neurologist. Sculptor 44
Sculptor44 is offline   Reply With QuoteReply With Quote
Reply

Tags
breathing, hospital, mayo, pill, worse


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Mayo clinics Geordie Reflex Sympathetic Dystrophy (RSD and CRPS) 5 06-08-2013 04:35 AM
Where are the 3 Mayo Clinics located? dreambeliever128 Reflex Sympathetic Dystrophy (RSD and CRPS) 9 03-16-2007 09:15 PM


All times are GMT -5. The time now is 01:44 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.