Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 03-13-2023, 05:07 PM #1
Sculptor44 Sculptor44 is offline
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Join Date: Oct 2020
Posts: 180
3 yr Member
Sculptor44 Sculptor44 is offline
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Join Date: Oct 2020
Posts: 180
3 yr Member
Default Mestinon Fragil But Most Powerful

Past few days proved more powerfully than ever power and fragility of Mestinon. I was on it a few years before I was so clear on this. I remember the pharmacy and the refill that changed the game and my life. I may do this in 2 submissions. My staying power with brain and eyes is even worse. The short version is I started my new refill and Wow suddenly I was seeing SO clearly I was over joyed!! My breathing and Vision are usually the first ways I FEEL my Mestinon. So in checking into differences about that refill what it was was how long the bottle was open and subjected to normal humidity in the air. I now only get original sealed bottles of Mestinon. Since my pills per day are higher than some of you this works. I get a sealed bottle of 100 2x a month. My home is higher humidity because of humidifiers for Sjogrens so I keep my Bottle in a ziplock bag. Mestinon pills get weaker from humidity.. sculptor 44
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"Thanks for this!" says:
Lara (03-26-2023)

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