Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 06-13-2023, 08:56 PM #1
Sculptor44 Sculptor44 is offline
Member
 
Join Date: Oct 2020
Posts: 180
3 yr Member
Sculptor44 Sculptor44 is offline
Member
 
Join Date: Oct 2020
Posts: 180
3 yr Member
Default To ER for Help

Been a lot more sick as IVIG is gone from body and my new Assisted Living hasn’t offered me the Support I have needed. I am very concerned about my Chest and my throat, my Voice and swallow. If anyone can send a good thought I appreciate it greatly. Sculptor 44
Sculptor44 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lara (06-13-2023)

advertisement
Old 06-13-2023, 09:19 PM #2
Lara's Avatar
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Location: 16.9203° S, 145.7710° E
Posts: 11,010
15 yr Member
Lara Lara is offline
Legendary
Lara's Avatar
 
Join Date: Sep 2006
Location: 16.9203° S, 145.7710° E
Posts: 11,010
15 yr Member
Default

All the best to you.

Hadn't seen you post in so long so figured you weren't doing so well.

I hope they can give you some relief.

take care.
Lara is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Sculptor44 (06-20-2023)
Old 06-20-2023, 08:37 PM #3
Sculptor44 Sculptor44 is offline
Member
 
Join Date: Oct 2020
Posts: 180
3 yr Member
Sculptor44 Sculptor44 is offline
Member
 
Join Date: Oct 2020
Posts: 180
3 yr Member
Default

I did get some basic help at ER like Solumedrol shot 125 units and a small IV fluids. It has my legs, my lower body stronger today so I ate better. My chest is more comfortable too tho I really need help that is a lot bigger in that area. I had my new private Aide with me at ER. She works as a nurse in a lab. Huge asset!! My Internist of many years could have helped if she had not fled Iowa. But she set up some referrals and a new family doctor abuse she saw I was in trouble.. my brain has been affected by getting worse. Head is clearer today but wow has my Left Eye worse!! I am having financial troubles which is affecting my stress level and money for uncovered medical. When I was 21 my husband bought me a string of quality pearls with a sapphire clasp. I am going to try to sell it to a good jeweler. It is quite beautiful. I have also considered bankruptcy.. I should sign off now. Still having a lot of pain in my throat. This is the worst my immune system has been in years. Sculptor 44
Sculptor44 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lara (06-20-2023)
Old 06-21-2023, 12:35 PM #4
agate's Avatar
agate agate is offline
Senior Member
 
Join Date: Aug 2006
Location: Wild West
Posts: 1,016
15 yr Member
agate agate is offline
Senior Member
agate's Avatar
 
Join Date: Aug 2006
Location: Wild West
Posts: 1,016
15 yr Member
Default

It's good to know that you've found a little help even though it's clear that more is needed.

It's not clear whether you've found a replacement for the internist who left. These doctors who keep bouncing around are certainly getting to be a problem.

Since moving to this state nearly 14 years ago, I've been through 3 PCPs even though if it had been my choice, I'd have opted to stay with any of them. They went elsewhere.

I'd recommend selling the pearls! And don't even think about pawning them. I've sold most of my jewelry over the years, and the money came in very handy. I wasn't wearing it anyway as fiddling with clasps and losing pieces because they fell off when I wasn't looking just got to be a pain.

I filed for bankruptcy many years ago. It's a difficult way to go but I'm glad it was there as an option for me. And after it was complete, I found that credit wasn't as ruined as I'd feared.
__________________
Repeal the law of gravity!

MS diagnosed 1980. Type 2 diabetes, osteoarthritis, osteopenia.
Avonex 2002-2005. Copaxone 6/4/07-5/15/10. Currently: Glatopa (generic Copaxone), 40mg 3 times/week, 12/16/20 - 3/16/24
agate is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Sculptor44 (06-21-2023)
Reply

Tags
chest, concerned, greatly, throat, voice


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 01:03 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.