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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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07-05-2023, 05:59 PM
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Did a brave thing this morning. I called an excellent specialist I have seen at University of Iowa and got a Triage Nurse and explained some of my worsening situation. Then I went ahead and asked her to help me get into my first Neurologist I was assigned to there in 2008. The one who is Expert at reading bodies and put me in hospital at my 2nd appointment!. I saw my new Family Doctor last Thursday and the disaster that was was half the reason for today. Last Thursday was so very bad. I have to find a different provider to replace this new doc. Sculptor 44
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07-08-2023, 02:01 PM
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so a little more info on the new family doc visit. Basically the appointment was a threat. I was told she was not going to prescribe my one hydrocodone per day again unless I came! She is ****** off big time that I have significant pain and she has to deal with it. And I had told her office in calls that I Really don’t want to be discussing pain issues when I have so much else going and. Worsening symptoms. And her nurse for the appointment had a totally different agenda and peppered me with questions about how I use my hydrocodone. Reminder here I get one pill per day. I said to her 1 pill isn’t enough I have said this for 2 years. Thankfully I had remembered the medical record from my first pain clinic doc who did support me and documented well on meHe did nerve blocks on my Occipital Nerves. He was at a hospital. I switched to a smaller clinic because the trip and the process were far less taxing. But small clinic doesn’t do full nerve blocks. My Pain is the worst it’s been in some time. The doctor didn’t believe I have severe pain in .y left Eye with this. The only thing she wanted was for me to sign a contract so she never again had to give me more than 30 pills in a month. I gave her the records from my first Pain doc. He does acknowledge my Left Eye Pain involvement. And this new doc is a blamer. At End I lifted my pant up to show her my swollen feet . She freaked out and said “what are you doing taking too many Advil or Tylenol?” I take none of that but she was walking out the door. My new doctor made no acknowledgement that my health is in significant and I am having difficulty where I live. Sculptor 44
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| "Thanks for this!" says: | Lara (07-09-2023) |
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07-09-2023, 09:02 PM
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I'm not sure exactly what hydrocodone is as our names are different here. I imagine it's like our panadeine which is codeine mixed with something else, usually paracetemol and used for moderate pain. There are different strengths though.
Panadeine only has a 1/2 life of barely 4 hours from memory. I could be wrong, but that's a long 23 hours of the rest of the day that you're doing without relief from pain. I was thinking about this later and came back to edit my original message and to say they probably don't want to give you more hydrocodone in case it interfers with your breathing considering that's the big problem, but there are other methods of pain relief and types of medications that shouldn't interfer with breathing and it's unfair to leave a patient with so many health issues affecting them so badly and not offer alternatives. Quality of life!!! Last edited by Lara; 07-10-2023 at 12:03 AM. |
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