Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 10-19-2023, 01:52 AM #1
Sculptor44 Sculptor44 is offline
Member
 
Join Date: Oct 2020
Posts: 180
3 yr Member
Sculptor44 Sculptor44 is offline
Member
 
Join Date: Oct 2020
Posts: 180
3 yr Member
Default SCARED Equals Angry

So moments of honesty finally with Daughter. As I am balled up in pain from Pleurisy and even cried begging her to use her Voice with Doctors to MOVE my case along. She replied if you promise you won’t get angry at me. I said but don’t you see that I am scared when my breathing is so bad. And yes it can come out as Anger. It is so hard to keep my self safe when my body is failing in new ways regularly. I had my Paster tell me once he never saw someone so patient after he watched me not miss a beat as my young daughter broke my watch clasp and I caught it before it fell to the floor while we were talking to him. Actually I have become scared of my daughters and it feels awful. I think some of their anger is fear too. Fear of losing their last living parent. So daughter did call and Mychart a message to my pulmonologist and the calls came early the next morning. Sculptor 44
Sculptor44 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lara (10-21-2023)

advertisement
Old 10-21-2023, 05:03 PM #2
Lara's Avatar
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Location: Far North Queensland
Posts: 11,009
15 yr Member
Lara Lara is offline
Legendary
Lara's Avatar
 
Join Date: Sep 2006
Location: Far North Queensland
Posts: 11,009
15 yr Member
Default our daughters

It's a few days later so I'm hoping you're feeling a little better today???

These are really important feelings that you've written here Sculptor.

I too notice people see anger or frustration instead of the pain or other reasons behind it. It happens all the time. Scared can look like anger. Pain can make us angry and pain can make us scared.

I also think that a lot of our feeling scared and sounding "angry" to others is because it's such a very difficult place to be when we lose our independence and now need to rely on others more who perhaps may not always have the force or skills to move ahead the same as we would have.

All these years, to me, you have seemed such a strong person. When your daughters see you in pain and unable to navigate the system as you could in the past, then they probably get scared too.

I know my daughter tries to help, but there's a fine line. She's intuitive, so knows when to just let me be but sometimes she forgets and comes across a little "bossy" and you know, it's hard being older now and sick when you were always the one who held everyone together. It truly is hard and I feel for you and understand. I just hope that someone gets you some medical attention as you need it. I know my daughter is scared of losing me and we've done everything together now for so long ever since she came back home after university and living in the world for a while. It's BIG worries for her. Bigger than big. Bigger than her world can bear but most of the time she keeps it all tempered and balanced so I don't worry too much and get sicker. I must say though that I wouldn't be here today without her, she's such a blessing.
Lara is offline   Reply With QuoteReply With Quote
Old 10-25-2023, 09:55 AM #3
Sculptor44 Sculptor44 is offline
Member
 
Join Date: Oct 2020
Posts: 180
3 yr Member
Sculptor44 Sculptor44 is offline
Member
 
Join Date: Oct 2020
Posts: 180
3 yr Member
Default Grateful

I am alone too much so thank you for kind words. Seems I may have been assigned new Neurologist which my Pulmonologist suggested in recent Televisit. And a friend is trying to get to ER. ALOT Going on. Can share more later. Sculptor 44
Sculptor44 is offline   Reply With QuoteReply With Quote
Reply

Tags
anger, angry, daughter, fear, scared


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Scared, confused and a little angry UncleBob New Member Introductions 4 10-03-2014 12:34 AM


All times are GMT -5. The time now is 06:29 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.