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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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12-31-2023, 06:55 PM | #1 | ||
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Recently I again declined a NIF test at the ER when I was there for the Single Breath Count of 9 event. This hadn’t been offered to me in some time. MY experience has been that a less experienced doctor will use this one test to dismiss my situation. I am supposed to do an overnight home Oxygen test. I am so sicker today. I have other Autoimmune issues and this morning my. Chest was So badly Shutdown with inflammation I was in big trouble. Sculptor 44
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01-03-2024, 10:21 PM | #2 | ||
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[B]I did the Bedtime Oxygen test in last 12 hours. I have done these before but not for about year. This one was VERY DIFFERENT. I have no idea what hat the results will be. The nurse finally asked me to at least lay in bed as long as I can if I wake with little sleep. To some degree I had to force myself to finish TEST this morning. I can’t get a Solumedrol shot until after as that will improve the Outcome. Sculptor 44
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01-04-2024, 01:38 PM | #3 | ||
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My pulmonologist history has been filling my thoughts in the last 24 hrs. In 2008 the pulmonologist who sent me to Mayo Clinic was terrified by my pulmonary stress test even halting it Early. Next morning his office called and in a panic sent me to heart doctor as they suspected heart attack. I went but no heart attack. When I said Oxygen test I just was very different I meant in my chest. VERY BAD. Sculptor 44
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01-09-2024, 11:07 PM | #4 | ||
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[B]Much happening. Received Document stating my Overnight Oxygen test Results. I see Changes in report but honestly I am in such need of treatment like I have gotten at ER…..Solumedrol and IV fluids I can’t fully assess it. I don’t expect a quick or Easy explanation from My Pulmonologist. It is the worst one I have had by far. I managed to start getting some regular Sun or Tanning again about a month ago. My Endocrinologist and Settled on this for my Significant Vitamin D deficiency a long time ago. I can’t absorb it by mouth. It is modest but regular. Since Living here at Assisted Living I couldn’t go to a Tan Salon.. oh how I miss the warmth on my whole back tanning that way. I know doing this has helped keep me out of the hospital.. My tan unit a table top thing my daughter and I researched. My oxygen is still poor and I don’t yet have help to get Solumedrol I need. Sculptor 44/B]
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