[redtail]

does anyone else suffer from migranes? Im recovering from one yesterday morning,(I take imigran, which works well) but today my Mg is sooooo bad, my memory doesn't alway work well, Im sure Im not usually this bad after a migrane, I was wondering what other people go through??

[bluestone]

Hi redtail
I don't suffer from migraines, but my memory is worsening and worsening... I'm taking notes and, when MG allows, trying to study music (I think I must do something for my brain...)
Hope you are better!
Bluestone

[Angie B]

I get a lot of headaches, Im on Topomax, which can make your mind a bit crazy. I also take percocet if the headaches get out of control. Not sure why the headaches, other then maybe muscle weakness in the neck? I would encourage you to talk to you neuro.

Good Luck.. Angie

[loisba]

I don't get migraines, thankfully. I do get the occasional sinus headache, and I suppose that weak neck muscles could cause some headaches, like Angie says.
As for the memory problems, brain fog comes with the territory. I don't remember exactly why --- ---- but many of us suffer from it.

[redtail]

thanks all
Ive always suffered from migranes, since I was a child, my neuro is aware I suffer, he put me onto the imigran. I just get so frustrated that it makes my mg so much worse!! and my memory, ahhh well, I suppose I could be so much worse off, at least Iam able to take a few days to recover, without having to worry about work etc.

[rumpled]

I get them as well. I am on topamax too. I find now that the weather really slams me and that I get terrible headaches with low pressure weather patterns.

[The Canadian]

I get migraines too: my bi-weekly ivig brings them on as well as weather. I was on topamax 100mg daily but Dr. Drachman told me to stop taking the 'dopamax'. It was making me too tired during the day.

He also switched me from trazodone to elavil as my bedtime sedative/headache prophylactic, however, elavil and I do not agree.... My blood pressure spiked, I tossed and turned at night instead of a restful, uniterrupted sleep a la trazodone AND it made me eat everything in sight!! I gained too much weight in too short of time with the elavil.

I no longer take the elavil. I'm back to a lower dose of trazodone (25mg). I have been feeling more energetic since stopping the topamax. For the migraines, I either take Amerge or Tylenol 3s.

Jennifer in St. Catharines, ON

[Ro from Vermont]

Seems like since I turned 35...I'm 40 now. My "sinus" type headaches that I've suffered with since childhood have graduated into "real" migraines with olfactory auras. This means I don't get the "halo" or visual auras, but get "auras" like all smells nauseate me, sounds get extremely loud, my head throbs, I get GI symptoms, etc.

Mostly, they seemed premenstrual related, but now are just showing up any time they damned well choose...UGH

Like Jen, all the docs treat me with is Tylenol 3s at the very first signs of migraine and continue till all the symptoms are gone. Everyone is soooo afraid to do things that will mess with my MG, which is being fairly managed with Mestinon, Imuran, Methotrexate and biweekly IVIGs right now.

If somebody finds something that will work well, and not mess with the MG, please let me know!

Thanks.
Ro

MG dx age 14 in 1981, had every treatment known to man, except rebooting and Prograf......

[carriestreet]

I too suffer from migraines but I am not sure if it is from the MG or from APS (antiphospholipid Antibody Syndrome). I know that APS can cause them. Bummer part is because of the blood clotting I get I can't take percription Migraine medicine because they restrict the blood vessels in the brain. I can only take Excedrine Migraine (?) and take a nap. If I get it at the beginning, during the Auras I am okay, otherwise they can last days. Sounds, smells, and lights really bug me during them.
I was just recently diagnosed with MG so I am not sure how they are related. Thought all of my weakness was from headache and APS.

[The Canadian]

My headaches and migraines have been non-stop for over a month. Maybe Dopamax was controlling them after all!

Mind you, I'm very affected by weather and 'tis the season to start the sinusitis, etc. I had an MRI done to rule out other possibilities (normal scan).