Hi Everyone-I am new to this forum & I was wondering if anyone out there on Mestinon had issues w/ side effects? I was on it when I was 1st diagnosed, but the dosage had to be increased a few times before I had any results. Then, I started having tremors & spasms. I went off the meds (per my Dr.) & the tremors / spasms stopped. However, the MG symptoms returned (drooping eyelids, double vision, muscle weakness). So, I went back on mestinon. My Dr. said this sometimes happens. Well, my twitching came back, but this time in my face. So I am off it again. I am frustrated as I do think the mestinon was helping, but I cannot handle the side effects. HELP!!!
I hope you all are well. peace.