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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Junior Member
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Hi Everyone
I was wondering if anyone out there could help me with some comments. Although taking mestinon, deflazacort and imuran, I'm still having MG symptoms that are worsening every crisis. I'm handling the side effects of the drugs, like tremors, twitching, light head, stomach aches, and the "side effects" of MG, like muscle pain and depression, but now there is something new, making me crazy. I'm having strong pains on my legs, arms, spine, back, these pains are a burning feeling moving from one place to another, but mainly on ankles, wrists and many points on spine. I have an appointment with my neuro next days and I hope he can help me on this too. I'm very grateful to those who have responded to me every time I posted and would like to say that your advice helps me very much. I would like to be more helpful to you and I admire those who have the strength to be there for the others although their pains. Anyway, any comments would help… I hope you all are well and wish you the best. Hugs Bluestone |
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