Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 07-25-2009, 08:46 AM #21
ebethbb2 ebethbb2 is offline
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Default sick off being sick

Hi how are you . Well i have had it all thymus gland, myasthenia gravis.cancer beauase of this .well can thymus gland grow back and how fast?
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Old 07-27-2009, 01:35 PM #22
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Heart Hi ebathbb2!

Welcome beth! You had cancer of the thymus? Have you had radiation therapy? What med are you on? Hopefully Brennan, Annie, Becky or Neutro will be able to help with your question......I had my thymus removed but dod not have cancer.

I am so sorry to hear you aren't feeling well. Do you have a good dr?

Can't wait to hear from you!

Erin






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Originally Posted by ebethbb2 View Post
Hi how are you . Well i have had it all thymus gland, myasthenia gravis.cancer beauase of this .well can thymus gland grow back and how fast?
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Old 07-27-2009, 03:12 PM #23
Tbarney Tbarney is offline
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I have read if they don't get all of it that part of it can grow back. I guess a CT scan would show that.
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Old 07-27-2009, 04:38 PM #24
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Hi ebethbb2,

Welcome to the group! I also read that if any was missed it could grow back, but it dosen't happen very often. Are you concerned that this has happened to you? I would think a CT scan would be able to confirm that. When did you have your thymectomy? Would like to know more of your story when you feel comfortable. Everyone here is very supportive and helpful. Hope to hear from you. Take care.

Hugs,
Pat
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Old 05-14-2015, 08:14 AM #25
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Default Thymus regrowth

Hi...I was diagnosed with MG in 1998 and had my thymus removed....after 10 yrs, I finally went into remission,however symptoms started to return in October of 2014. I saw my new neurologist 2 days ago 5/12/2015 and he asked if I'd had any scans done to check for a regrowth of my thymus....which I have not. He stated that yes, it can grow back...
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Old 01-06-2016, 10:24 PM #26
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Red face Thymus Gland grown back??

I got on this site because I had the same question. I have M.G. and my speech had gotten so thick I couldn't talk and eating and swallowing were hard. I had my thymus gland removed in April 2008 and now I am having the same problems that I had before the surgery. I must take a drink of something after every bite because it only goes down so far when I swallow...liquid, especially carbonated, wants to go up my nose. I cannot control my tongue as well. It has become such a chore to eat that even if I'm hungry, I dread it and as soon as I get the least bit satisfied, I stop. The only good outcome of this is I'm losing weight..down to 192. I have a new neurologist I'm seeing in Febuary and I will ask him. I'm taking care of my mother who has ALZ and it's increasingly frustrating. She is hard of hearing and for her to understand me I must raise my voice a little...this is very tiring plus sometimes she perceives it as me being angry with her and I have to explain it. I am getting so tired. I'm glad I found this place where I can come and talk to those who share my frustrations. I also have eye droop, double vision and get out of breath easily. Thanks for reading this. I'm good at writing novels. LOL
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Old 04-07-2016, 11:39 AM #27
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Default Thymus regrowth

Hi, I'm new to this site and could not for the life of me figure out how to start a new post. I did find this post, and even though it is old, it applied to my concern.

I was diagnosed with MG in 1992 and had a trans-sternal thymectomy that same year. There was no thymoma. I have had several short live remissions over the years, as well as a few hospitalizations for exacerbations. Over all I have done pretty well on Mestinon, which I am currently on. Over the last few months I have had to increase my dosage by more than double and still struggle with symptoms.

I have had significant shortness of breath and a feeling of pressure in my sternum.

My neurologist is having me get a CT with contrast to see if the thymus gland has re-grown.

My question is: Is there an increased chance of a thymoma (either cancerous or benign) in a re-grown thymus? There is a crazy amount of cancer in my family history.

I have searched the internet for an answer and can't seem to find one. Does anyone have any information on this? Thank you in advance for any information you could direct me toward.
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