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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
View Poll Results: Have others with MG experience weight gain prior to or shortly after being diagnosed? | ||||||
Yes, during the year prior to being formally diagnosed. |
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3 | 27.27% | |||
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Yes, in the year after diagnosis. |
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4 | 36.36% | |||
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No, not prior to starting treatment with Prednisone. |
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5 | 45.45% | |||
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No, I am not being treated with steroids and have experienced no weight gain. |
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0 | 0% | |||
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Multiple Choice Poll. Voters: 11. You may not vote on this poll |
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#11 | |||
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Member
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Taking pred reduces the level of potassium.
I think you should also reduce the amount of salt and sugar in your food and increase the amount of calcium. See http://www.neuro.wustl.edu/neuromusc...mgrx.html#pred for possible effects of MG medications. Maurice. |
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#12 | |||
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Member
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Hi Scots Kat,
My last 2 blood tests showed low potassium levels. Im now taking a supplement, as well as eating foods high in potassium. I will be interested to see what the next blood test results show. |
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#13 | ||
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New Member
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Quote:
I also have myasthenia gravis. I was diagnosed when I was 16, I am 25 now. Currently on disability. I used to play sports in High school and before I was diagnosed. I had lost over 50 pounds. I was able to continue playing sports after alot of tests, battles with alot of DRs and I had a Thymectomy in Dec 1999. I was diagnosed in Oct of 1999. So it happened pretty fast after I was diagnosed. I had alot of good days and bad days like most I am sure. I felt pretty alone with no one really understanding where I was coming from. I still feel that way. I have a very good support team thank goodness. So now I am on disability unable to work as of now. i am currently seeing a new dr and taking imuran and mestonin. I have had many drs in the process with alot of them not believing me. I have currently put on atleast 50 or more pounds. I was recommended by my dr to see a nutritionist. Thanks for listening love to hear more from you Thanks again Tanya |
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#14 | |||
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Member
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First of all, hi everyone, it's been a long time since I've posted. Been too busy.
Now, to add my little 2 cents worth on the weight issue. I'm on Mestinon only, have had only the weight gain that comes with advancing age and general decrepitness! ![]() Hugs to all ![]() Lois
__________________
Lois . |
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