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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
View Poll Results: Have others with MG experience weight gain prior to or shortly after being diagnosed? | ||||||
Yes, during the year prior to being formally diagnosed. | 3 | 27.27% | ||||
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Yes, in the year after diagnosis. | 4 | 36.36% | ||||
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No, not prior to starting treatment with Prednisone. | 5 | 45.45% | ||||
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No, I am not being treated with steroids and have experienced no weight gain. | 0 | 0% | ||||
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Multiple Choice Poll. Voters: 11. You may not vote on this poll |
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02-06-2008, 12:10 PM | #11 | |||
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Taking pred reduces the level of potassium.
I think you should also reduce the amount of salt and sugar in your food and increase the amount of calcium. See http://www.neuro.wustl.edu/neuromusc...mgrx.html#pred for possible effects of MG medications. Maurice. |
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02-07-2008, 03:16 AM | #12 | |||
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Hi Scots Kat,
My last 2 blood tests showed low potassium levels. Im now taking a supplement, as well as eating foods high in potassium. I will be interested to see what the next blood test results show. |
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02-11-2008, 10:20 PM | #13 | ||
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New Member
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Quote:
I also have myasthenia gravis. I was diagnosed when I was 16, I am 25 now. Currently on disability. I used to play sports in High school and before I was diagnosed. I had lost over 50 pounds. I was able to continue playing sports after alot of tests, battles with alot of DRs and I had a Thymectomy in Dec 1999. I was diagnosed in Oct of 1999. So it happened pretty fast after I was diagnosed. I had alot of good days and bad days like most I am sure. I felt pretty alone with no one really understanding where I was coming from. I still feel that way. I have a very good support team thank goodness. So now I am on disability unable to work as of now. i am currently seeing a new dr and taking imuran and mestonin. I have had many drs in the process with alot of them not believing me. I have currently put on atleast 50 or more pounds. I was recommended by my dr to see a nutritionist. Thanks for listening love to hear more from you Thanks again Tanya |
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04-04-2008, 03:03 PM | #14 | |||
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First of all, hi everyone, it's been a long time since I've posted. Been too busy.
Now, to add my little 2 cents worth on the weight issue. I'm on Mestinon only, have had only the weight gain that comes with advancing age and general decrepitness! But I've been able to take off about 30 pounds. Most of that began to come off months ago when i realized i was gluten sensitive. My weight loss eventually stopped, and then started a slow creep upward again. Within the last couple of weeks I've been trying to get a handle on that, and I think I've got it turned around. One of the foods that had been my favorite for eating out, I finally realized was probably glutening me through cross contamination. So I cut that out. I've also added in an exercise routine using a video I've had for years called Callanetics. I definitely have to go at my own pace, and cannot do as many repetitions as the video calls for, but I've been able to manage it so far because the regime calls for slow stretching type exercises, and very gentle movements. Just the thing for this aging myasthenic. Hugs to all Lois
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Lois . |
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