Patricia I understand you not wanting to take Provigil if you are hyper. And that Mestinon can be tricky at times. I understand about being frustrated when you can't do the things you used to. I, myself, used to be very active, also. Moving to the bush, how adventurous! Yes, it would be nice if they developed a medicine that could help us better deal with this Myasthenia stuff. In the meantime, I guess we will have to keep on plugging along You take care Patricia and I will do the same

Hi,
I think Provigil is an individual thing. For example, I've heard of some people who can only take one 100mg a day, and that keeps them awake all day, and even some of them have to take 50mg.
And then there's me.... I take 200mg in the morning, and 100mg in mid afternoon, and fall into bed like a rock at 10pm. It does Not make me gittery like coffee does, thank goodness, cause that would be horrible. I drink coffee,and the mixture still doesn't make me gittery, and I'm very caffiene sensitive. Again, we're all snowflakes, same disease, different reactions. It's so weird.
Provigil is often prescribed for MS patients too. For those who only take it once in a while, that's great, but I'll tell you, I can't go with out it, or I'd probably be in a coma. It has made a huge difference in my life.

Yes, GodDreamer2007 I agree with you that we are all snowflakes. And I am happy to hear that Provigil works so well for you.

GodDreamer2007,

I took 1 Provigil on Thanksgiving Day and felt pretty attentive all day. I was able to actually socialize for 3 hours straight and did not feel worn out. However, it was hard to get to sleep and only got about 3 hours of sleep. I felt worn out the next day and rested alot. My face muscles were worn out. I think I did alot of talking and smiling because I felt so good! I did not take another Provigil this next day.

Anyways, I am trying to take Provigil on special type occasion days. I will probably take another one on Christmas, or better yet a 1/2. Hopefully the following day will not feel like I have crashed. Perhaps I need to wean off the next day by taking 1/4?? And then the next 1/8???????????

I need your advice. Have you ever forgot to take one and felt worn out? Do you think you need to wean off of this type of medicine, even if you only take it for a day?

It seems like a pretty powerful type of drug, and they don't even know exactly how it works? That kind of scares me. Does it scare you? I think it is pretty new, right? As such, there have not been any real long term type of studies to see what is does to our bodies, right?

Thank you for any advice you may have.

Cindy

No, I've never had to wean down, I can just stop it at any time. I have forgotten to take it, and felt the difference during the day. I usually will fall asleep, or need to rest.
Provigil doesn't stay in the body for very long, probably about 4 to 6 hours I think it is, you may need to check that out for sure.
My life is so much better with provigil in it...You sound extra sensitive to it, so I don't think I'd take a whole pill either. My doctor told me when I first started it that it could be cut in half or what ever, even a forth, so I did do that at first.
What did your doctor explain to you about it? Maybe he can prescribe a lower dose for you.
You may want to check out Provigil.com
it has a lot of information, and you can even google it to get other medical peoples views on it.
Love Lizzie

Lizzie thanks for your response. The last few days I have been taking 1/2 Provigil tablet and feel much better, more energy to do things. Haven't felt that crashing/worn out feeling like before. I almost feel normal or like I used to. I will read up on it at Provigil.com. I am so glad it works so well for you.
Hope it will continue to work for me, too. Thanks again Lizzie.

I have been trying to get my neuro to prescribe me the provigil for a while now..but my insurance comp. will not accept it. so they gave me Amantadine...I have had provigil in the past and if it makes you too hyper you can always take 1/2 at a time to see if it helps...The Amantadine doesn't do much for me. I work nights and wind up sleeping most of the day away and then going to work.. Good luck to you linda

Good morning Linda, Lizzie, and other MGers,

Well, I have been feeling pretty good lately. I have gotten used to taking 1Provigil daily the last couple of weeks. My ability to function--stay awake and do things--has increased greatly due to Provigil. I can actually stay alert/awake for more than 2-3 hours at a time---maybe 4-5 hours. I hope this continues and I don't have to keep increasing the Provigil like I did with Mestinon. Now I can take my Mestinon every 4-5 hours instead of always every 3 hours.

With this new ability to stay awake/alert I have been Christmas shopping and really enjoying it! I actually almost feel like normal for a few hours!

I hope everyone is doing fine these days.

so glad that the provigil is working so well for you....i go back to the neurologist on thursday and am going to beg this time for it,even if i have to pay for it myself....i have been falling alot due to vertigo and my sleep attacks have been bad.. slept for 14 hrs straight ... no recolection of anything..didn't even hear phone ringing right next to me,alarm clock rining very loudly right by my ear or steve comiing home banging around loudly as usual..went to see the ENT today and he said all looked fine but set up a series of more tests for next week...just wish i could walk a straight line and stay awake for the holidays....doing the best i can these days with so much pain and depression....wishing all and little less pain anad stress for the new year....moonstar

went to the nerologist today and she had some free-samples of provigil to give to me...so maybe for the next couple of weeks i may be able to stay awake during the day to get things done and maybe try to have some fun?? well at least i will be awake....linda