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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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12-25-2006, 02:48 AM | #21 | |||
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Good luck Moonstar. I think you are going to enjoy yourself.
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12-26-2006, 07:18 PM | #22 | ||
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hi cindy....can't say i am enjoying myself yet but..... i did start the provigil 100 mgs. yesterday i still was very sleepy. couldn't hold my head up..sleeping sitting up...crazy..today i felt the same way so i took another 50 mgs and seemed to do thr trick..i am still in pain as my pain medds are not working great today but i am awake....it is very strange how one day the meds work well and then another they do nothing for me....at least the provigil seems to be working.. hope things are better for you today...linda
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12-27-2006, 08:28 PM | #23 | |||
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Linda, I understand what you said, "it is very strange how one day the meds work well and then another they do nothing for me." This happens to me also. With the Provigil I still have to rest but am wakeful for 3-4 hours at a time more so than just the 2-3 hours. Also, I drink coffee all day and it helps me to keep awake. When I feel achey, usually my ribcage area, I rest and use a heat pad. I also take extra strength tylenol once in awhile. REST is the key for me. I have also noticed with Provigil I do not always have to take my 1 1/2 tablets of Mestinon every 3 hours. I can stretch it to sometimes 5 or 6 hours. I also notice that I may have to take a 1/2 tab more of the Provigil. I only take 1 now.
Hang in there lady, every day is a new day! Best wishes. Cindy |
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