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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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10-14-2006, 07:16 AM | #1 | |||
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Junior Member
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Good morning to all. I am curious if any of you have tried Provigil, and if so, how did you like it? My neurologist said it may help me mentally to be more alert, and in doing so, I may be able to deal with my physical weakness better. She said the medication does not really help physical weakness. She usually prescribes it for narcoleptic patients.
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10-14-2006, 09:27 AM | #2 | ||
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Junior Member
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I have taken Provigil for about a year - works great...I no longer feel like taking a nap at 10am! I can usually work full days, come home and do a few things like make dinner, etc... It keeps you alert but it doesn't really make you feel different. I sure notice if I forget to take it though. The doctor prescribed 200mg every morning but I cut it back to 100mg after a few months - it made me so wide awake that I was having trouble going to sleep at night. Good luck!
Gabe |
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10-14-2006, 03:18 PM | #3 | |||
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I've never taken Provigil, but I appreciate you posting the question about it, and Gabe's answer. It's something to keep in mind should I need something like that in the future, since I'm "between" neuros, and my GP appreciates any info I can find to help her treat my MG better!
Hugs,
__________________
Lois . |
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10-16-2006, 04:49 PM | #4 | |||
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Junior Member
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Yes Lois it is something to keep in mind. You ought to ask your GP for some Provigil. You might be like me and need a little pick me up around the holidays!
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10-16-2006, 05:06 PM | #5 | ||
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Junior Member
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Cindy,
I am glad you were able to try it. I ususally take it through the week and skip on weekends - I am still working full-time and found myself falling asleep at my desk by 10 am. On weekends I just doze between things! Gabe |
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10-17-2006, 12:03 AM | #6 | |||
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Junior Member
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Again Gabe, glad that Provigil works for you and thanks for your input.
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10-16-2006, 04:44 PM | #7 | |||
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Junior Member
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Quote:
------------------------------------- Hi GodDreamer2007, Thanks for your response. I tried 1 100mg Provigil yesterday and I did feel a "subtle" type of difference. I still did my napping like usual, but I felt that if I needed to be involved in a conversation or whatever, this pill would urge me forward a tad without me feeling like I would be pushing myself so much. Does that make any sense? And as you said, "being awake doesn't strengthen the muscles," is so true. Myasthenia Gravis, to me, affects mostly my physical strength and this pill affects my mental state. Maybe the pill uplifts my mental state so I can perhaps feel a little stronger physically--mind over matter. Anyway, I think I will save the pills for social types of gathering---talking, smiling, eating, etc. I think the pills will make things more pleasant Thanks again for your input. __________________ Cindy ---------------------------------------- So Gabe, with the holidays coming up and all I will probably use the Provigil. I am retired now so don't have to do this and that. I can rest all I want to and boy do I Thank you again for your input. |
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12-02-2006, 03:58 AM | #8 | ||
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I have been trying to get my neuro to prescribe me the provigil for a while now..but my insurance comp. will not accept it. so they gave me Amantadine...I have had provigil in the past and if it makes you too hyper you can always take 1/2 at a time to see if it helps...The Amantadine doesn't do much for me. I work nights and wind up sleeping most of the day away and then going to work.. Good luck to you linda
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12-14-2006, 09:05 AM | #9 | |||
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Junior Member
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Good morning Linda, Lizzie, and other MGers,
Well, I have been feeling pretty good lately. I have gotten used to taking 1Provigil daily the last couple of weeks. My ability to function--stay awake and do things--has increased greatly due to Provigil. I can actually stay alert/awake for more than 2-3 hours at a time---maybe 4-5 hours. I hope this continues and I don't have to keep increasing the Provigil like I did with Mestinon. Now I can take my Mestinon every 4-5 hours instead of always every 3 hours. With this new ability to stay awake/alert I have been Christmas shopping and really enjoying it! I actually almost feel like normal for a few hours! I hope everyone is doing fine these days. |
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12-18-2006, 08:03 PM | #10 | ||
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so glad that the provigil is working so well for you....i go back to the neurologist on thursday and am going to beg this time for it,even if i have to pay for it myself....i have been falling alot due to vertigo and my sleep attacks have been bad.. slept for 14 hrs straight ... no recolection of anything..didn't even hear phone ringing right next to me,alarm clock rining very loudly right by my ear or steve comiing home banging around loudly as usual..went to see the ENT today and he said all looked fine but set up a series of more tests for next week...just wish i could walk a straight line and stay awake for the holidays....doing the best i can these days with so much pain and depression....wishing all and little less pain anad stress for the new year....moonstar
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