Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 02-01-2008, 09:41 AM #1
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Default Cynwldkat

How is your sister doing? Any luck locating an MG expert for her??

You're in my thoughts,
Ro
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"The name's Mya....Myasthenia"
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Old 04-15-2008, 06:38 PM #2
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Just thought I'd bump this one up, and see if Cynwldkat is about, and how your sister is doing??
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Old 07-26-2008, 12:23 PM #3
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Thanks for your concern.....
My sister is still chugging along with this horrible illness, Myasthenia Gravis--a horrible word! She is once again back in the hospital now fighting Marsa which she actually got while in the hospital getting her hip partial. I will say that she has improved somewhat. She gained about 20 pounds back only because of her very caring husband! She was just starting to walk again. She got that "sparkle" back in her eye. It will return once she gets through this surgery and gets the infection out I hope! I do check in once in awhile but things have been pretty hectic. I actually flew to CA to visit with her which was wonderful. Thanks again for all of your concern.
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Old 07-26-2008, 11:29 PM #4
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Hi cynwldkat,

yep it is a horrible word!!
Glad to hear your sister is "chugging along", and has a caring husband this must make a huge difference. Sorry to hear about the bumps in the road she's come across, but you're right her sparkle will return!! Glad to hear you had a great visit with her.
You both take care, and thanks for keeping us up to date
redtail
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