Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 03-17-2008, 06:10 PM #1
GI6607 GI6607 is offline
Junior Member
 
Join Date: Mar 2008
Posts: 52
15 yr Member
GI6607 GI6607 is offline
Junior Member
 
Join Date: Mar 2008
Posts: 52
15 yr Member
Smirk MG and Desert Storm

Hello to everyone! I am not too swift on computer but would like to know if anyone has any information on Desert Storm vets being diagnosed with MG. I retired from the military a year ago after almost 41 years of military service, finishing my career as a Colonel. Just a few months before I retired Mayo Clinic diagnosed me with the disease although my wife had told me for a couple of years that I was getting lazy eyes. Anyway, I take 180 mg of PB a day, but the symptoms of eye weakness and limb weakness seem to be worsening. I was diagnosed with sleep apnea and musco-skeletal weakness during the VA Gulf War physicals in 1993 and wonder if those maladies could have been precursors to outright MG. Without feeling sorry for myself, I have documentation from Department of Defense that my unit was in the wind plume of the Sarin Gas explosion in Iraq in 1991, I took PB when combat started and organophosphates were used liberally around our tent sleeping and living areas.
GI6607 is offline   Reply With QuoteReply With Quote

advertisement
Old 03-17-2008, 06:24 PM #2
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,678
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,678
15 yr Member
Default

I did a Google search of - "wind plume of the Sarin Gas explosion in Iraq in 1991"
here's results of that-
http://www.google.com/search?hl=en&c...91&btnG=Search

and "organophosphates" results-
http://www.google.com/search?q=organ...ient=firefox-a
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
GI6607 (03-17-2008)
Old 08-24-2010, 01:40 PM #3
ap750 ap750 is offline
New Member
 
Join Date: Aug 2010
Posts: 1
10 yr Member
ap750 ap750 is offline
New Member
 
Join Date: Aug 2010
Posts: 1
10 yr Member
Default Myasthenia gravis

I was wondering were still checking this site.




Quote:
Originally Posted by GI6607 View Post
Hello to everyone! I am not too swift on computer but would like to know if anyone has any information on Desert Storm vets being diagnosed with MG. I retired from the military a year ago after almost 41 years of military service, finishing my career as a Colonel. Just a few months before I retired Mayo Clinic diagnosed me with the disease although my wife had told me for a couple of years that I was getting lazy eyes. Anyway, I take 180 mg of PB a day, but the symptoms of eye weakness and limb weakness seem to be worsening. I was diagnosed with sleep apnea and musco-skeletal weakness during the VA Gulf War physicals in 1993 and wonder if those maladies could have been precursors to outright MG. Without feeling sorry for myself, I have documentation from Department of Defense that my unit was in the wind plume of the Sarin Gas explosion in Iraq in 1991, I took PB when combat started and organophosphates were used liberally around our tent sleeping and living areas.
ap750 is offline   Reply With QuoteReply With Quote
Old 08-31-2010, 03:52 PM #4
Annie59 Annie59 is offline
Member
 
Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
Annie59 Annie59 is offline
Member
 
Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
Smile

I just ran across the research that was done at Mayo Clinic on the chemicals involved in Gulf War Syndrome. I found it interesting that tho one of the drug isnt supposed to cross into the brain on the drugs did seem to cause that to happen with they were both involved. They tested the mestinon and the pyrethryn (not spelled right but its the bug repellant) that was on the uniforms. Sounds like they dont play well together.

Couple days after reading it it occurred to me that troops on mestinon could be more subject to stress and therefore more easily PSTD because mestinon heightens nervous system. I have struggled with feeling like I'd had coffee and when on it didnt use caffiene at all. Couldnt as it would make me very hyper. The research on this I saw was done on mice and the mice all had increase startle response when given mestinon. Stress of course is so hard on ones immune system so that would set people up for a lot of the autoimmune diseases.

I myself know of another soldier that has MG.

Annie59

Quote:
Originally Posted by GI6607 View Post
Hello to everyone! I am not too swift on computer but would like to know if anyone has any information on Desert Storm vets being diagnosed with MG. I retired from the military a year ago after almost 41 years of military service, finishing my career as a Colonel. Just a few months before I retired Mayo Clinic diagnosed me with the disease although my wife had told me for a couple of years that I was getting lazy eyes. Anyway, I take 180 mg of PB a day, but the symptoms of eye weakness and limb weakness seem to be worsening. I was diagnosed with sleep apnea and musco-skeletal weakness during the VA Gulf War physicals in 1993 and wonder if those maladies could have been precursors to outright MG. Without feeling sorry for myself, I have documentation from Department of Defense that my unit was in the wind plume of the Sarin Gas explosion in Iraq in 1991, I took PB when combat started and organophosphates were used liberally around our tent sleeping and living areas.
Annie59 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
redtail (08-31-2010)
Old 08-31-2010, 04:05 PM #5
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

There are some new posts on the net about Gulf War Syndrome, linking it to the Anthrax vaccines given to the soldiers.

This vaccine back then was experimental, and had squalene in it.
This adjuvant has shown autoimmune damage in animals and is still banned by the FDA here for that reason. (But the military is exempt).

A small number of soldiers were vaccinated and at the last moment were not deployed to Iraq then, but stayed in US. They also developed the Syndrome!

While this is still controversial...I tend to think it is a vaccine autoimmune stimulated disorder.

You can search this and find many hits on this subject like this:
http://www.autoimmune.com/GWSGen.html

Vaccines are NOT safe as we all think. Some of the H1N1 allowed into the US last fall (because we didn't have enough of non-squalene type) had this adjuvant in them.

There are some videos on YouTube with reputable doctors explaining how squalene causes autoimmune disease when INJECTED into the body.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DesertFlower (09-03-2010), redtail (08-31-2010)
Old 08-31-2010, 06:45 PM #6
Annie59 Annie59 is offline
Member
 
Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
Annie59 Annie59 is offline
Member
 
Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
Default

Boy this is good to know. I never heard of this. My lung doc has been very pointed about me needing to have flu vaccines after this last season. I am not comfortable with vaccines. So many questions and I am chemically sensitive to begin with. Thanks so much Mrs D.

Annie59
Annie59 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mrsD (09-01-2010), redtail (08-31-2010)
Old 09-02-2010, 04:32 PM #7
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Default

ap750, I wish GI6607 were still around but hasn't been on for a while.

I read that info too, Mrs. D., about the soldiers who didn't even make it over to Iraq and got sick. They get some nasty vaccines when they enlist. And I "love" the bait and switch tactics when the talk about the lesser "evil" of mercury and thimerosal in vaccines yet completely ignore squalene.

Annie59, Mestinon doesn't "heighten" the immune system. Did your doctor tell you that? What it does is to inhibit an enzyme in our body called acetylcholinesterase, whose job it is to "eat up" acetylcholine. That way, we can keep more acetylcholine in our neuromuscular junction longer and we can use more. Mestinon may, in fact, suppress the humoral immune system that produces antibodies. I wanted to clarify that for you. Also, the caffeine in coffee does the same thing as Mestinon does. It inhibits that enzyme too. So caffeine may help make muscles stronger or make them weaker if you get too much of it.

So many things happened to soldiers during the Gulf War. The vaccines, the sarin gas, taking Mestinon, being exposed to both permethrin and organophosphates, having diet soda sit out in 100+ weather when aspartame goes toxic above 86 degrees . . . so much didn't go well for them.

I know of someone who had a pneumovax shot and had their immune system go into overdrive (again, probably the squalene), cause nervous system damage and cause their left arm/hand not to function for months.

Deciding to have a vaccine or any other drug is a personal decision. You should always do research before putting anything into your body! Those in the Armed Services weren't really given a choice.

Annie
AnnieB3 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mrsD (09-02-2010)
Old 10-19-2010, 04:28 PM #8
GI6607 GI6607 is offline
Junior Member
 
Join Date: Mar 2008
Posts: 52
15 yr Member
GI6607 GI6607 is offline
Junior Member
 
Join Date: Mar 2008
Posts: 52
15 yr Member
Default MG and Desert Storm

Here I am. I haven't been on for awhile but some things have happened. As I thought was coming quite awhile ago, my young wife divorced me after 22 years of marriage. She said I was not the same guy she married and was impossible to live with. After three and a half years, the Veterans Administration finally accepted my claim that MG was service related. They granted me 30% disability for the organophosphate exposure in the Gulf that they agreed was the catalyst for my myasthenia gravis. I am now taking Imuran instead of Cellcept but am still taking the Mestinon. Finally, I now have to wear a brace on one of my legs. Still kicking. Still here. Hope all are doing well...







Quote:
Originally Posted by AnnieB3 View Post
ap750, I wish GI6607 were still around but hasn't been on for a while.

I read that info too, Mrs. D., about the soldiers who didn't even make it over to Iraq and got sick. They get some nasty vaccines when they enlist. And I "love" the bait and switch tactics when the talk about the lesser "evil" of mercury and thimerosal in vaccines yet completely ignore squalene.

Annie59, Mestinon doesn't "heighten" the immune system. Did your doctor tell you that? What it does is to inhibit an enzyme in our body called acetylcholinesterase, whose job it is to "eat up" acetylcholine. That way, we can keep more acetylcholine in our neuromuscular junction longer and we can use more. Mestinon may, in fact, suppress the humoral immune system that produces antibodies. I wanted to clarify that for you. Also, the caffeine in coffee does the same thing as Mestinon does. It inhibits that enzyme too. So caffeine may help make muscles stronger or make them weaker if you get too much of it.

So many things happened to soldiers during the Gulf War. The vaccines, the sarin gas, taking Mestinon, being exposed to both permethrin and organophosphates, having diet soda sit out in 100+ weather when aspartame goes toxic above 86 degrees . . . so much didn't go well for them.

I know of someone who had a pneumovax shot and had their immune system go into overdrive (again, probably the squalene), cause nervous system damage and cause their left arm/hand not to function for months.

Deciding to have a vaccine or any other drug is a personal decision. You should always do research before putting anything into your body! Those in the Armed Services weren't really given a choice.

Annie
GI6607 is offline   Reply With QuoteReply With Quote
Old 10-19-2010, 04:37 PM #9
SandyC's Avatar
SandyC SandyC is offline
Wise Elder
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
SandyC SandyC is offline
Wise Elder
SandyC's Avatar
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
Default

Jim's records indicate biochemical exposure which is related to his diagnosis of MS. It is amazing how many military are developing MS or MG. Jim spent time in Jordan for desert training before the Gulf War started. This was when Iraq and Iran were going at it. The shots they had to take were crazy! He was dx'd with MS and medically discharged before the war broke out. Fastest medical discharge.

What I hope is with all these diagnosis is they come closer to finding out what may be triggering the disease and find a cure faster.
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt
SandyC is offline   Reply With QuoteReply With Quote
Old 10-19-2010, 04:40 PM #10
GI6607 GI6607 is offline
Junior Member
 
Join Date: Mar 2008
Posts: 52
15 yr Member
GI6607 GI6607 is offline
Junior Member
 
Join Date: Mar 2008
Posts: 52
15 yr Member
Default VA Disability

Does Jim receive VA disability? How is he coping?








Quote:
Originally Posted by SandyC View Post
Jim's records indicate biochemical exposure which is related to his diagnosis of MS. It is amazing how many military are developing MS or MG. Jim spent time in Jordan for desert training before the Gulf War started. This was when Iraq and Iran were going at it. The shots they had to take were crazy! He was dx'd with MS and medically discharged before the war broke out. Fastest medical discharge.

What I hope is with all these diagnosis is they come closer to finding out what may be triggering the disease and find a cure faster.
GI6607 is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
3.5 year old son with VP shunt- storm headache? Gavin Hydrocephalus 23 02-22-2010 10:22 PM
Way OT - Camels in the desert jingle Survivors of Suicide 5 10-11-2006 03:04 PM


All times are GMT -5. The time now is 06:13 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.