Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 05-12-2008, 12:04 PM #1
Josie S's Avatar
Josie S Josie S is offline
Junior Member
 
Join Date: May 2008
Location: MO
Posts: 22
15 yr Member
Josie S Josie S is offline
Junior Member
Josie S's Avatar
 
Join Date: May 2008
Location: MO
Posts: 22
15 yr Member
Default Asking for help...

I'm taking Mestinon and I'm wondering if there are others out there that have found ways of calming their stomachs while on the med. Are there foods that would help? Herbs?
Today is a rough one. One of those days when I want to go back to bed... for a long time. I consequently beat myself up for even having the thought. Lots of "supposed to's" .
Also, for those of you on Mestinon... does it make you more tearful?

Thank you, Josie
Josie S is offline   Reply With QuoteReply With Quote

advertisement
Old 05-12-2008, 02:33 PM #2
Janet Kelley Janet Kelley is offline
Junior Member
 
Join Date: Sep 2007
Location: Maine
Posts: 17
15 yr Member
Janet Kelley Janet Kelley is offline
Junior Member
 
Join Date: Sep 2007
Location: Maine
Posts: 17
15 yr Member
Default

Don't ever beat yourself up for wanting to sleep! My goodness girl just do what your body tells you!! I asked my H about Mestinon stomach. He is also on cyclosporine which also affects his stomach - naseau allot. The drug that works best for him is Zofran.
Janet Kelley is offline   Reply With QuoteReply With Quote
Old 05-13-2008, 07:34 PM #3
Maxwell'sMom's Avatar
Maxwell'sMom Maxwell'sMom is offline
Member
 
Join Date: Oct 2006
Posts: 371
15 yr Member
Maxwell'sMom Maxwell'sMom is offline
Member
Maxwell'sMom's Avatar
 
Join Date: Oct 2006
Posts: 371
15 yr Member
Default

Welchol helps me.
Eating crackers can help. but for me, it did not help..I was always on the toilet with terrible diarrhea, and cramps.
I don't know of any herbal remedies, nor have I ever heard of any, sorry.
Love Lizzie
Maxwell'sMom is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Josie S (05-13-2008)
Old 05-13-2008, 10:59 PM #4
redtail's Avatar
redtail redtail is offline
Member
 
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
redtail redtail is offline
Member
redtail's Avatar
 
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
Default

Hi Josie.

I've been on mestinon for nearly 6 years, and although it does cause me diarrhoea, the vomiting was worse for me, especially when I was on the time-span. The only thing that has worked for me are probanthine tablets, I carry them where ever I go.
I also make sure I take them with food, otherwise they play havoc with me. I still have what I consider a "build up" of medications, and have to stay close to the toilet for the day, but these only happen occaisionally now.
Dont feel to badly about going back to bed, early on I use to get home from work, have a glass of milk for dinner go to bed, and if I wasn't working the next day would sleep til 10am!! No where near as bad now!!
I dont think mestinon makes me more tearful, I'm sure its the frustration of having MG, and having to cope with the loss of my "normal" life before!! and not being able to do everyday things.

hope this helps a little
take care
redtail
redtail is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 07:16 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.