Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 05-16-2008, 03:15 PM #1
GI6607 GI6607 is offline
Junior Member
 
Join Date: Mar 2008
Posts: 52
15 yr Member
GI6607 GI6607 is offline
Junior Member
 
Join Date: Mar 2008
Posts: 52
15 yr Member
Default MG AND Central Sleep Apnea

A couple of months ago I joined this site and reported how I was diagnosed with MG a few months before military retirement in early 2007 and wondered about a connection to chemicals I was exposed to overseas. I take a heavy dose of Mestinon to control the MG, but that leaves me queasy or nauseous all day.

Now, I have just undergone two sleep studies which have diagnosed me with both central and obstructive sleep apnea. The sleep center told me they strongly recommend a machine for anyone scoring over 5 on their apnea scale. My score was 29.5. I received my Bi-Pap this week with a pressure of 18. I am wondering if the central apnea (neurological) has any connection to the myasthenia gravis. I am still working and almost fall asleep each evening during the 20-minute drive home.
GI6607 is offline   Reply With QuoteReply With Quote

advertisement
Old 06-19-2008, 01:47 PM #2
Erten Erten is offline
New Member
 
Join Date: Jun 2008
Posts: 1
15 yr Member
Erten Erten is offline
New Member
 
Join Date: Jun 2008
Posts: 1
15 yr Member
Default

Quote:
Originally Posted by GI6607 View Post
A couple of months ago I joined this site and reported how I was diagnosed with MG a few months before military retirement in early 2007 and wondered about a connection to chemicals I was exposed to overseas. I take a heavy dose of Mestinon to control the MG, but that leaves me queasy or nauseous all day.

Now, I have just undergone two sleep studies which have diagnosed me with both central and obstructive sleep apnea. The sleep center told me they strongly recommend a machine for anyone scoring over 5 on their apnea scale. My score was 29.5. I received my Bi-Pap this week with a pressure of 18. I am wondering if the central apnea (neurological) has any connection to the myasthenia gravis. I am still working and almost fall asleep each evening during the 20-minute drive home.
Hi, I'm also a MG patient with central sleep apnea. My doctor advised me to use CPap but it is really to hard to sleep with this machine. So I'm trying to find a alternative medicines to use.

Any advise about the matter is highly appreciated.
Erten is offline   Reply With QuoteReply With Quote
Old 06-23-2008, 12:04 PM #3
GI6607 GI6607 is offline
Junior Member
 
Join Date: Mar 2008
Posts: 52
15 yr Member
GI6607 GI6607 is offline
Junior Member
 
Join Date: Mar 2008
Posts: 52
15 yr Member
Default Central Sleep Apnea & MG

Quote:
Originally Posted by Erten View Post
Hi, I'm also a MG patient with central sleep apnea. My doctor advised me to use CPap but it is really to hard to sleep with this machine. So I'm trying to find a alternative medicines to use.

Any advise about the matter is highly appreciated.
They tried two different facemasks on me with the bi-pap at high pressure of 10/18. Neither worked as they continuously leaked, so they have given me a device that places two soft rubber pieces into my nostrils. This works much better and is much more comfortable. The only problem is, you absolutely cannot open your mouth while sleeping. At least I can sleep on my side with this device. I know of no medicine that can control central sleep apnea as it is neurological. My myasthenia gravis has spread, now affecting both eyes. In addition to the Mestinon I take, they have now prescribed prednisone which I regularly take with no side effects yet.
GI6607 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
How many have sleep apnea? pegleg Parkinson's Disease 12 04-01-2008 10:54 AM
Central sleep apnea Lily Sleep Apnea & Sleep Disorders 4 01-25-2008 06:02 AM
UARS/Upper Airway Resistance Syndrome, type of sleep disorder, is not sleep apnea: concerned lady Sleep Apnea & Sleep Disorders 5 11-25-2007 03:08 AM
Sleep Apnea Test, dreambeliever128 Reflex Sympathetic Dystrophy (RSD and CRPS) 3 06-26-2007 09:52 PM
sleep apnea nessa Social Security Disability 2 06-15-2007 06:24 PM


All times are GMT -5. The time now is 05:58 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.