I have only taken mestinon since my thymectomy in 02 and it is good to hear I am not the only one with memory issues. I am going to be 57, so maybe it isn't just old age! Hope you are all having a good day!

Take care,
Pat

I've been on Cellcept (2500 mg/day) for 9 years and I haven't noticed any side affects (Yea!)

I do have some memory loss, but I think being 59 has something to do with that. I just started having problems a couple of years ago.

Hello all! I have taken BOTH cellcept and Imuran - loved the Cellcept, but it didn't really do it's thing for me, so I switched over.

As for the "brain fog" and memory loss - I attribute that to my MG. I was (fairly) articulate before the MG, but now struggle to spell words that would have been ez in the 3rd grade. I also struggle with memory loss and finding the right words.........I now write down all of my questions b/4 I see my dr - just in case......

In my case I blame the MG - not the meds.

Have a great and strong day!
Erin

I've been on Imuran first and am now on Cellcept. I had memory loss early on before cellcept, not sure why. It was a bit scary because I could look at something, know what it was, but not remember what it was called, I now just don't worry about it as it makes it worse!!

I think it's kind of like aphasia. My dad suffered a massive stroke 6 years ago on July 17th and has suffered from that since then. He KNOWS what he wants to say, but just can't get the words out. I have the same problem (to a much lesser degree)......

I do believe it is the MG, not the meds, especially since we all seem to have it to some degree......oh (!) and talk about spelling! I wrote better when I was in the 3rd grade! Darn MG!

Hope this helps a bit~Erin

My husband felt better when I told him about this post. Over the last few months I have been frequently using the wrong words. It drives my family crazy. I often catch myself. I am a math teacher, so kind of scary to think I may be telling them false things. I have explained this symptom to my students and have told them to not be afraid to question things that I say if they feel it does not seem like I am making sense.

I'm not on cellcept, and i have memory loss. My mom is 63 and i'm 40...and she can remember more than me.....lol!!

I have also noticed some significant changes in my memory and trying to think of the right word to use in a sentence. It's the most embarrassing when I'm in the middle of a board meeting. I thought it was just me!!

I've been on CellCept for one year and haven't noticed any side effects. It has helped me, although not so much right now as I have overworked and not been balanced like I should.

I didn't want to go on CellCept and even went to Duke to consult with doctors there specializing in MG. He said the first thing I needed to do was go on CellCept, so I did.

On another note, when I went to Duke I had just had my IVIG treatment and was on Mestinon. The well known research doctor there did testing on me and said I didn't have MG - this was after he agreed with the other 2 neurologists in TN and GA who had diagnosed me (based on his clinical exam). But...because his test was negative, he said I didn't have it. When I gave my neurologist this doctor's notes, he actually laughed. My doctor said the test wouldn't show up anyway because of my meds and IVIG. He thought this doctor's findings were ludicrous. I'm saying this for those not diagnosed - don't let yourself be intimidated. I would have been if not for my neurologist and other doctors in TN.

Hi Everyone!

I have a wonder pill for the brain fog and memory issue. It's Acetyl L-Carnitine with ALA (alpha lipoic acid). It isn't contraindicated with any of our meds, or anything else for that matter. It's fantastic at clearing the brain fog!

It is a naturally occuring element, generally the body get's from eating meat, but the body gets less efficient with age (and MG and some other conditions) at the conversion. It helps the brain regrow nerve connections and the response during brain fog is QUICK!

I have done accounting for years, and when I can't seem to figure out the easy entries, it's pretty bad! I should be able to do them in my sleep!
They are even doing studies and using it to treat early Alzheimer's with success.

You can get it from a vitamin shop or online. Just make sure it's the Acetyl form because it crosses the blood brain barrier. Also, I have taken the formula with ALA and without it. The ALA is a very powerful anti-oxidant, but really seems to boost the carnitine.

Any of you that try this, let me know your results, ok? It's helped me, my mother, my cousin (I don't know why she has such trouble with brain fog, but her reaction was also quick and very dramatic - she won't be caught without the supplement now!).

to all.

Becky

the price of cellcep generic has come down quite a bit