I've been taking Cellcept for two years now and have noticed a slow and gradual loss of memory and not able to concentrate or problem solve ever since. Does anyone know if this is a side effect from Cellcept or Myasthenia Gravis? I've been to the doctor about it many times and they say it's Adult ADD, but I was never diagnosed as a child and didn't show signs of having this until the last few years. I can't think at all anymore. It's hard to pay bills, clean the house, get groceries, or just finding the right word to say in a sentence. It's very frustrating! I've tried different drugs for ADD but the side effects are making it impossible. My mind is blank all the time and I find myself wandering around the house trying to figure out what I'm doing. Any thoughts or similar reactions to Cellcept?

Hi! I can't give you any concrete evidence, but I have heard before that MG can affect memory a bit. I've noticed my spelling has worsened significiantly since diagnosis and I also occasionally have struggled to use the correct word when speaking (there is an actual name for this but funnily enough - I can't think of it right now)! I can't figure out WHY MG would affect memory - as far as I know the neuromuscular junction doesn't have anything to do with memory but my neuroscience knowledge doesn't go far enough to comment. I'm not on CellCept, so I can't attriubute my bad memory to that. As far as attributing it to age I'm only 29! Sorry I couldn't be of more help. I hope someone else has more info for you!
~Kathy

My spelling (and typing) have also gotten significantly worse since being diagnosed with MG. I am also having difficulty finding the right words sometimes. I am glad to see I am not the only one with these symptoms. I am usually very articulate, but now between the memory issues and the speech issues from the disease, I am very conscious of what I am saying.

I have also taken Cellcept for a much shorter time, 4 months. I was having severe side effects, but my doctor told me that some strong warnings came out from the FDA about the drug. Please talk to your doctor about this. However as far as memory loss and not being able to concentrate and sometimes not even being able to finish a sentence, I do experience these with MG. Hang in there and try to find out about Cellcept. I was just started on Imuran, which is suppose to have less side effects. Good luck!

Thank you!

I was diagnosed with MG in 2002. I have been on several different treatments. I used Immuran for a few years, I had alot of side effects with Immuran. I have been on Cellcept for a few years now and its been the best meds yet for me. I have seen any side effects. I would say my life is back to normal. Its been alot more expensive but worth every dime.I highly recommend Cellcept. I have had no memory loss from its use, but I have had memory problems from the MG.

Hi Pepe, I had been told that Cellcept had fewer side effects than any of the others, including Immuran....my neuro said the only pblm with cellcept was "its toxic to the wallet", so I haven't yet considered it...was afraid of Immuran's side effects, but I hope it works for you.....I'll try to find the warnings your Dr told you 'bout....

Shihan, glad to read that you are so much improved & Cellcept works for you.....

Dottie

I have been taking Cellcept since January of this year and see no memory loss yet....not to say it won't happen...just not yet. The other side effects though are that I'm getting infections really easy now compared to when I was on Immuran. I had bad side effects from the Immuran, but the Cellcept has given me renewed strength.....just sick from infections all the time though. Hope your memory loss gets better!
Simon

Pepe, I was on cellcept for awhile, had good results from it, much better than methotrexate ! I did the imuran with both of them to. I am sorry to hear your not doing well with it, there are a lot of other immune suppresents they can try instead.
Mary

If you google 'cholinergic deficits in Myasthenia Gravis,' you will find a study on this...There is definately evidence of an 'attack' on cerebral acetylcholine receptors the way there is on muscle ones...I tried to post the link, but it says that I need to have at least 10-posts to post it...Whoops! lol

I also have anxiety and serious memory issues since developing my MG symptoms...I thought it was old age, but then I remembered that I am 26 :S lol

Nicky