[eeyore2]

I feel like I'm cheating on Brain talk, but it seems nobody's out there anymore

I'm propped up in my bed, ****** off about my weekend in the ICU for respiratory muscle weakness and dehydration. I slept most of the day and can't concentrate enough to get any work done.

Walking to the bathroom gets me short of breath and my neurologist hasn't called me back (the covering MD this weekend didn't want to do anything because I'm not officially diagnosed (I'm probable MG), didn't get any worse over my ICU stay (didn't improve either).

I'm now just hoping the IVIG I had on Wed and IV fluids I got this weekend kick in and get things back to baseline.

How do others put up with this crap?

What is the threshold that will get my doc to try something (I'm also on Mestinon, without which I would likely not be breathing)?

My inspiratory and expiratory pressures are down (I was told that I currently do not have much reserve), but I didn't want to stay in the hospital where they weren't going to be doing anything and I couldn't get to sleep. After 3 days they always want to change the IV site and it took 7 sticks to get the one I had anyway. At least this way I won't pick up a hospital acquired pneumonia. The docs agreed, telling me to call my neurologist and he would do something...still waiting for that to happen (not holding my breath)

I have an appoint at Hopkins in the end of July... I guess I just sit around letting my muscles waste, hoping I don't get a cold until then.