NeuroTalk Support Groups - Steroids and side effects....

Good morning! I hope you are feeling well today!:D Today is going to be a better day - I can feel it! I started on some vitamin supplements today (1500 mg. of calcium + D) and C per my hemotolagist, so I think I may feel better really soon. As for my abscesses; I had a really bad dentist who shaved my teeth down to put on crowns and killed all of them. I've had over 30 root canals in the last 10 years, so now of course I have to see a specialist and have 2 really wicked toothaches (but I'm used to them by now)..........I can sleep through most of my root canals. I jut hate being on antibiotics all the time, cuz' they make me sooooo weak. I really hope that when you go to Hopkins they give you some other alternatives, b/c you shouldn't have to put up with your neuro - he/she sounds really awful. After 4 years of IV IG, you'd think they could come up with another alternative and end your suffering - that is just morally WRONG on their part! You need to be able to get out there and be "normal" again - we all do! I was scared to death when I was told I'd have to have surgery, but from what I've read it was necessary. My neuro made me undergo another IV IG for 5 days straight before I had surgery (to make sure I wouldn't have to be intubated for too long) - I still had to for several hours after the surgery, and woke up with that damn thing in my mouth - scary - and tubes coming out of everywhere, but my blood work was slightly better right after my surgery, so who knows? Prednisone makes me hyper too, that and really moody, plus I've got all the great side effects (weight gain, moon face, acne, panic attacks, facial hair, etc.) but on the other hand I can now somewhat function, so I just take 1/2 a xanax when I take my morning dose -that way I don't fly off the handle every morning. Keep hanging in there and let me know if here is anything I can do to help:D

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Originally Posted by eeyore2 (Post 324293)

An infection and thrush...that really sucks--when I had thrush it hurt to swallow. What are the abcesses from--the surgery?

Yes I do have asthma, but my respirator muscles are weak also NIF and PIF of ~-20 and +30. Because I'm aspiring and refluxing that triggers the asthma and then I don't have the muscles to cough stuff out...it is just a mess. Today I had a slightly better attidue...probably due to the predisone...it tends to make my hyper...just before it makes me totally neurotic and pissy.

I used to have good veins...now I have 1 left

Steriods (and abuse) tend to destroy veins

I take all the prayers I can get--and I've got you on my list also.

I have 3 kids (8-14) and an awesome hubby (and 2 rowdy golden retrievers)...my older 2 are away at camp for 2 weeks so things are quiet.

My neuro won't give me a prognosis..or any treatment alternatives...he just tells me to rest . My pulmonologist tjust tells me to come back the the ED if my breathing gets bad again (last adminision my NIF and PIF were -12 and 12...which is getting too close to being intubated.

I'm hangin in there. I'm sorry you've had a bad day.