I am also so sorry for what your baby has to go through. My mom was just dx'd two days ago. I don't know anything about this disease but am learning so much from many here. My mom also has other health conditions so it makes it hard to decipher which is which.

Please let us know how your son is doing and how you are doing as well. :hug:

My son is doing great...had his thymectomy on Friday and we are home now! He is feeling like a hundred bucks again. Full of energy and life like I remember him not so very long ago. I hope this holds out for at least awhile, I have so missed this smile on his face. I will keep in touch. Heidi:D

That is great news!

Whoohooo!!! :hug: